Monday, April 27, 2009

Western Pennsylvania county records largest number of students with autism

From the Tribune-Review in Pittsburgh. In the picture, West Mifflin Middle School student Jenna Granatire, 12, puts her name on a puzzle piece supporting autistic children as Leah Mangino, an autistic-support teacher, keeps an eye on the class.


The number of children with autism educated in Allegheny County is at an all-time high — surpassing even Philadelphia, the most populated county in the state.

During the 2007-08 school year, 1,570 autistic children were educated in the county's public schools, compared with 1,121 students in Philadelphia, even though that city has more students. Autism experts say difficulty in spotting and identifying the baffling disorder, environmental factors and parental awareness are factors contributing to the difference.

"We're somewhat surprised that Allegheny County has that high of a number," said Sarah McCluan, spokeswoman for the Allegheny Intermediate Unit. "It's no secret that the numbers of students diagnosed with autism has been consistently and dramatically increasing in the last decade."

Nearly 311,000 children between the age of 5 and 19 reside in Philadelphia, compared with approximately 229,000 residing in Allegheny County, according to 2007 U.S. Census Bureau statistics. In Philadelphia, 8.7 percent of children have a disability, compared with 6.9 percent in Allegheny County.

It is important to make an accurate diagnosis of autism as early as possible, experts said. Students misdiagnosed or diagnosed late in childhood do not get the help they need, said Dr. Scott Faber, developmental pediatrician at The Children's Institute in Squirrel Hill. But diagnosis is often difficult and can be subjective.

"When you see such a discrepancy in the numbers of individual diagnoses we see in schools, it has a lot to do with the people making the diagnoses," said Travis Haycook, assistant director of the school program at the Cleveland Clinic Children's Hospital Center for Autism. "You can't do a medical blood test to see if you have autism — you have to go through the different areas of deficit."

Autism covers a wide spectrum of disorders — ranging from mild to serious impairment — that affect communication, and social and cognitive skills. A student with autism might need therapy and education much different than other special education students, said Cathy Guzzo, director of Special Education at Penn Hills School District, which educates 83 autistic children, the second-most in the county.

"There are varying degrees of disabilities," Guzzo said. "We try to base it on what needs a kid has."

Faber said it is logical that more school-age children would be diagnosed with autism in the Pittsburgh area than in Philadelphia because of the pollution here, which he believes is a factor in the disability, and the medical and support services available here for disabled children.

"Maybe in Pittsburgh you're paying more attention to autism, maybe the parents are more aware. It could be any number of factors," said Nancy Erskine, director of special education high school region, school health and related
services with Philadelphia schools.

Nationwide and in Pennsylvania, one in every 150 children is autistic, statistics show.
Dr. Nancy Minshew, professor of psychiatry and neurology at the University of Pittsburgh's school of medicine and director of one of the National Institutes of Health's Autism Centers of Excellence, said autism experts in Allegheny County have a high level of experience with diagnosing the disorder, dating to the initial programs at Western Psychiatric Institute and Clinic.

"The kids are out there and are being picked up, and I don't think that is happening in other cities," Faber said.

In Philadelphia there are 3,265 children diagnosed with mental retardation educated in public schools, 2.4 times more than in any other county.

Jean Ruttenberg, executive director for the Center for Autism in Philadelphia, the oldest autism center in the nation, said psychiatrists at her facility re-evaluate many children diagnosed with mental retardation or attention deficit disorder and determine the child has autism.

"This is a complex disorder that is very difficult to diagnose," Ruttenburg said. "I'm sure misdiagnosing is still happening. There are people who are still untrained in autism making other diagnoses."

The state Department of Education estimated it would spend more than $941.3 million on special education funding this school year. The average cost to educate an autistic student is $18,790, though there is no standard amount because each child has unique needs.

As the number of autistic students in public schools has grown, districts have added aides and therapists to work with them one-on-one, McCluan said.

"Often times we see kids that have so much of the neurological stuff that people underestimate what they can do," Ruttenburg said. "Once we deal with those, it's like a different child."

Marie Mambuca's son Tony was diagnosed with autism 15 years ago. He is now a senior at North Hills Senior High School. For the first eight years, she spent 30 hours each week working on behavior training in her home with Tony. She recognizes the difficulties districts have in educating autistic students.

"If you've met a child with autism, you've met just one child with autism," said Mambuca, 46, of Ross. "You can't generalize the teaching, and the way you teach a child with autism is very different than the way you teach a child with Down syndrome. Each student is an individual, so think about how exhausting that is for a school."

Pennsylvania remodeler embraces universal design

From the Tribune-Review in Pittsburgh:

In early 2007, Jen and Bob Mankowski (pictured) were shopping around for a home of their own, with little success.

Both were software engineers who had returned to graduate school at the University of Pittsburgh. They wanted a reasonable commute to Oakland. Because Bob uses a wheelchair, the house had to have living quarters and a garage on one level — and a level lot.

After finding a ranch-style home on a hilltop in Kilbuck, they interviewed several contractors about widening the doorways and making other modifications. They found Harry Burns, president of Bellevue-based Home Evolutions.

"When we saw this house, we brought Harry in to see what we could do," recalled Bob Mankowski, 44. "He had all the right ideas and was very passionate about this stuff. We decided he was the guy to help us."

Burns' business specializes in certified "Aging-In-Place" design principles, a program developed by the National Association of Home Builders and the AARP. But modifications such as zero-threshold doorways and wall-hanging sinks and stovetops are not just for people with disabilities: They can help Baby Boomers stay in their homes despite encroaching mobility or vision difficulties.

"Most homes are not built with the changing needs of our population in mind," said Burns, 42. "They are built for a 5'10" man in good health."

That's a problem not just for the individual but for that person's community, said Roxanne Huss, director of home and community services at Three Rivers Center for Independent Living.

"It provides a better quality of life if a person can stay involved with their church, their social activities, their family and friends," Huss said. "It's also good for family members to be able to visit in a home setting. No one wants to go to a nursing home unless there's absolutely no other alternative."

Burns' passion for such renovations started close to home. His mother, Carolyn Vidt, lived for 26 years with a neurological ailment that impaired her vision and made it difficult for her to walk or stand for long periods of time. A chair of the Pennsylvania Rehabilitation Council and governor-appointed member of the State Rehabilitation Advisory Council, Vidt died in January of ovarian cancer at age 64.

Allegheny County last year introduced a $2,500 tax credit for new housing or renovations that incorporate accessibility into their construction, with city residents eligible for an additional $2,500 credit. But so far, a county spokesman said, only three people have applied for the "Act 132" credit.

Incorporating accessibility into new construction can add about 4 percent to the construction cost, Burns said. Renovating an existing home runs closer to 30 percent of the home's value. Avoiding an institutional feel is important, he said. For the Mankowskis, that meant — rather than building ramps — he eliminated a front stoop and built a curved concrete pathway. A sunken living room was elevated, with a hardwood radius around a fireplace.

An additional bedroom was built with heating piped under the floor — important for people such as Bob with spinal cord injuries, who find it difficult to maintain healthy body temperatures. The bathroom, tiled in amber-colored stone, features a European-style curbless shower with brushed metal grab-bars that match the showerhead and faucet.

"A lot of the 'universal design' concepts that make a home more accessible are hidden in plain sight," Burns said. "Why not install a barrier-free sink? Why not put nice tile lines on the front of a counter, so that as your vision degrades, you can easily identify the edges of the sink? To a layman, it just looks like a nice detail. If I didn't tell you why I put it there, you wouldn't have any idea."

Southern Nevada opens first school for students with autism

From the Las Vegas Sun:

Southern Nevada's first school for children with high-functioning autism has found a home in Henderson.

After searching for months for an affordable place to open a school, founders of The Achievement Academy will open the doors at the DJ Community Christian Academy, 95 S. Arroyo Grande Blvd., which is near Valle Verde Drive.

Although not affiliated with a religion, The Achievement Academy students will have access to the existing school's library, computers, playground and cafeteria.

The nonprofit Achievement Academy is scheduled to open Sept. 8 with about 20 students in grades first through eighth.

"We're just very fortunate to have found a school because of the economy," said founder Barbie Lauver.

The biggest advantage is that the autistic students will have the chance to interact with their normal-functioning peers. Autistic children almost always display deficiencies in social and communication skills, Lauver said.

"The academics we're absolutely fine with having the children being in a contained environment but socially, during recess and lunch, they'll be with typical peers and able to model their behavior and their conversations," she said.

Teachers from The Achievement Academy will supervise and support the interactions.

The Clark County School District offers individual attention in the classroom and with home-based programs for its students with autism, mental disabilities and hearing or vision impairments. But no single school or program could satisfy all the needs for children and adults with autism disorders, said Shannon Crozier, associate director of the Center for Autism Spectrum Disorders at UNLV.

The center is training the academy's staff.

"What we know is that autism has, for many years now, been enormously on the rise in Nevada," she said. "Whatever services we have are continuously being outstripped by demand."

One out of every 150 children is believed to have some form of autism, according to the Centers for Disease Control and Prevention.

"It's critical that the valley start to diversify the services that are available for individuals on the spectrum across their life span," Crozier said. "There is a tremendously diverse range of needs in this population. Starting with a school that is going to address the needs of children is an excellent place to start."

The Achievement Academy is a private school, which is awaiting accreditation from the state Department of Education. The accreditation should be approved in August, Lauver said.

It is the brainchild of Lauver, co-founder of the Asperger's Syndrome High Functioning Autism Support Group, which was founded seven years ago.

She pulled her 13-year-old son, John Matthew, from the school district nearly two years ago to homeschool him. At 4 years old, he was diagnosed with Attention Deficit Hyperactivity Disorder and Asperger's syndrome.

The curriculum is based on the students' ability levels, not grade level, and will emphasize life skills along with academics.

"We'll be instrumental in their social skills and making sure that they can be out in the community," said Karen Custer, a teaching assistant and music specialist. "They need to know how to go to the bank or ride a bus. They need to be able to vocalize for themselves and understand how to navigate different situations."

The teachers will also use music as a behavioral tool.

Custer is a classically trained violinist who has conducted research on how music affects children's behavior.

"We'll use it to prevent tantrums, to prevent breakdowns when a child becomes unfocused on their work if they have ADD, ADHD, anxiety -- any type of problem where they can't self-regulate their emotions," she said. "They listen to certain, selected tracks of music. We give them 10 to 20 minutes to just sit there and self-regulate so they can go back to the classroom and be an active part rather than be removed from the classroom."

Illinois father wins access to his kids' schools

From the Chicago Daily Herald:

Mike Lyons (pictured) saw the flight of stairs and decided he'd reached the end of his rapidly fraying rope.

The father of two students at Conant High School in Hoffman Estates had missed teacher conferences and awards ceremonies. He'd been isolated from the crowd at football games and swim meets.

So when Lyons, who has multiple sclerosis and uses a wheelchair, learned his daughter's recital was in the basement choir room, despite earlier assurances from the principal he'd be accommodated, Lyons took action.

Four years later - and three years since his youngest graduated - the Schaumburg man is finally confident other parents with disabilities won't miss out as he did.

Palatine-Schaumburg High School District 211 recently signed an agreement with the U.S. Department of Education Office for Civil Rights resolving a complaint filed by Lyons, his wife Christine, their daughter Becky and Chicago-based advocacy group Equip for Equality.

"I'm ecstatic," said Mike Lyons, 58. "This was a long fight. It will benefit whole new generations of students, families and teachers."

The agreement follows $53 million in renovations since 2006 to four of the district's five high schools and administration building. Much of that spending was not directly related to improving access for the disabled, but the work did remedy what advocates say were the most egregious of the Lyons' complaints. That included:

• Relocating Conant's special education department.

• Adding ramps to the school's second gym.

• Improving accessibility to Conant's football stadium.

• Making various classrooms, restrooms, entrances and parking accessible.

• Installing new elevators and adding more ground-floor classrooms.

About $18 million was spent on Conant's rehab, though District 211 spokesman Tom Petersen said there's no breakdown of what was allocated for accessibility improvements.

The district has also designated one person to coordinate compliance efforts, updated its Web site and adopted new procedures for accommodating people with disabilities and for handling grievances.

Equip for Equality attorneys Alan Goldstein and Amy Peterson have been working on behalf of the Lyonses since the complaint was filed in 2006.

"We hope this sends a positive message to other school districts they need to be concerned of accessibility needs of not just students but parents and family members," Goldstein said.

Lyons, a former reporter and journalism adjunct professor, and his wife were reluctant to take legal action, fearing retaliation against Becky and their son Matt, who graduated in 2006 and 2003, respectively.

They waited until Becky's senior year to file the complaint, following seven years of more informal - and ineffective - measures.

"I tried to be diplomatic," Christine Lyons said of the phone calls, meetings and letters. "We trusted they would correct these things, but promises were never kept."
District 211 maintains it was compliant with the Americans with Disabilities Act of 1990 and the Rehabilitation Act of 1973. By law, facilities built before then are only required to provide program access, not make structural changes. Goldstein calls that a horrible loophole.

In a prepared statement, District 211 said it "acknowledges that the original facilities, while compliant with the law, sometimes presented challenges to people, and we are pleased that all of the new classrooms, labs, and surrounding areas promote participation by all of our students and community members."

Mike Lyons resents the district's assertion it was compliant. He can list a dozen incidents that he says caused him to be humiliated, and even endangered, such as the time he became trapped on the second floor for 45 minutes following a performance in the auditorium while his wife searched for an employee with keys to the elevator and fire door.

And now he laughs about the difficulties he faced in meeting with Conant officials about his dyslexic daughter's own special needs: Ironically, the school's special education department was then accessible only by stairs.

"It just shows their sensitivity was totally delusional," he said.

The changes are long overdue, according to 1993 Conant graduate Chris Kutsch, who broke his neck during his sophomore year.

In order to continue computer-aided drafting classes, Kutsch was bused daily to Palatine High School, home to a program for physically disabled students. Conant's lab was up a flight of stairs and inaccessible to Kutsch's wheelchair.

He and his mom Diane fought to keep him at Conant despite the district's recommendation he transfer.

"Palatine does great things for those kids, but I was already established at Conant and needed those friends for support," said Chris Kutsch, now 34 and living in Florida.

Moving forward, Christine Lyons hopes the district will form a panel that includes disabled community members in order to regularly review accessibility needs.

Mike Lyons also hopes people with disabilities will feel comfortable enough to start showing up at events beyond graduation. The days of people being carried up stairs in their wheelchairs are over, he said.

"People tend to stay away because they don't want to embarrass their children," Mike said. "Now they don't have to be."


Wrestler Kyle Maynard wins his martial arts event

From MMAMania.com:

Congenital amputee Kyle Maynard (pictured) made his mixed martial arts debut on Saturday, April 25 at ‘Auburn Fight Night’ from the Auburn Covered Arena, dropping a unanimous decision (30-27) to Bryan Fry in an unsanctioned MMA bout held in Auburn, Alabama.

The bantamweight contest marked the end of Maynard’s nearly three year quest to compete in mixed martial arts. In 2007, the Georgia Athletic and Entertainment Commission denied Maynard a license to fight in the belief that he would be unable to properly defend himself.

Maynard never gave up his dream and found his opportunity against Bryan Fry in the State of Alabama — specifically chosen for its lack of a sanctioning body that could have potentially denied him the chance to compete.

But fight he did, and in an unfortunate and ironic twist, Maynard was prohibited from striking because his gloves were unable to be secured prior to the bout, presumably from the heat and humidity.

It didn’t stop a game — but somewhat restrained Fry from lightly peppering Maynard en route to the decision victory. Fry, who improves to 1-2 with the win, was careful not to engage Maynard on the ground where the former 35-16 Varsity
wrestler had a distinct advantage.

The pro-Maynard crowd repeatedly rained down boos for Fry’s play-it-safe routine, but the end result was probably the best case scenario. Maynard was able to achieve his goal of competing in mixed martial arts, and the sport avoids an unthinkable and perhaps catastrophic scenario.

Whether or not Maynard continues to pursue a career in mixed martial arts remains to be seen.

Blind Australian hosts TV program, performs stunts

From The Australian:

Something you will eventually notice about Steve Hurd is that he's blind.

But the first thing will probably be that he's jumping out of a plane, swinging on a trapeze, racing a car, climbing a cliff, or otherwise grabbing life by the throat.

Hurd, 48, made his media debut a decade ago by parachuting into a sports oval in Wagga while conducting a live radio interview to promote Disability Awareness Week, earning him the nickname "Hurdini".

Since then he has done all of the above stunts and more on the national community TV show No Limits, described as a magazine-style program about "the real, the outrageous, the tragic and the downright hilarious sides of living with disability".

"I have always been the sort of person who likes to go out and do things," Hurd says, with characteristic understatement. However, he isn't without fear. His preparations for the trapeze included "having a couple of beers and making my will".

Other people have always tried to limit Hurd to his disability, but he never has, and he isn't about to start now.

As a child he lived in an institution for blind kids and was told his destiny was a job in a sheltered workshop. Instead, he became one of the first disabled pupils to attend a mainstream high school, got the third-highest HSC mark of his year and did law at Melbourne's Monash University.

However, his passion is the media. Hurd was thrilled when he was named "outstanding male presenter" at community TV's Antenna Awards last month for his work on No Limits.

It is the first time someone with a disability has taken the prize. The show, which is produced by Grit Media, received seven nominations and also won "outstanding interview program".

"I was surprised when I was nominated and completely shocked when I won," he says. "The award proves I can not only do it, but do it well."

Hurd's stunts have a serious purpose. They are his unique way of teaching that people should never be defined by what they can't do.

"If we want to get people with disabilities into mainstream programs it won't be done by me preaching about human rights," he says. "The way to integrate disability into the media is to make it interesting and exciting for the audience.

"You make your point by being humorous and entertaining, and people get the message. As the Bruce Springsteen song says, 'Hit it in the funny bone, that's where they expect it least'."

As well as stunts, Hurd does comedy spots that are in their own way equally brave. He has applied for a job as an astronaut and dressed up as a Rastafarian busker to sing a song called Come on Blind Man, Integrate.

Soon he plans to swim with sharks and his dream is to undertake astronaut training.

"That would be the ultimate," he says, "To be the first blind person in space."

But just as big a challenge, it seems, is his goal of getting a full-time job at a mainstream media outlet.

"I hope one day a mainstream network will use me as a co-presenter of a holiday or adventure show," he says. "Then me just being there will be a message in itself, without having to bang on about it on a soapbox."

In the meantime, he and another TV producer are preparing to pitch a program idea to the public, commercial and pay-TV networks called Strange Days, which would follow a day in the life of ordinary people with interesting lives, some of them with disabilities.

Although Hurd was born completely blind, an operation at the age of two give him some function in his right eye. But that sliver of sight is dwindling and will soon be gone.

Typically, though, instead of bemoaning the unfairness, he is making the most of what he has.

"While I have that tiny bit of sight, every night I go out and watch the sun set," he says. "That's what I try to bring out: That there is so much in life to appreciate. You should just go out there and do it."

Federal stimulus money may help upgrade public housing elevators

From the New York Daily News. Here's a previous story in The NY Times.

Millions of dollars in federal stimulus money may finally fix the chronically broken and sometimes dangerous elevators in city public housing projects.

Seventy million dollars to repair and replace broken elevators is included in $423 million for renovations in the city's public housing buildings in the stimulus package, Mayor Bloomberg and Housing and Urban Development Secretary Shaun Donovan announced April 26.

"We understand how important safe elevators are," said Donovan, who served as city Department of Housing Preservation and Development chief until President Obama tapped him. "HUD supports [the city Housing Authority's] commitment to keep accidents and tragedies from happening in New York public housing," Donovan added.

The Daily News has chronicled long-standing problems with the elevators that have stranded disabled and elderly residents.

The issue gained prominence last summer when 5-year-old Jacob Neuman fell to his death while trying to get out of a stalled elevator in a Brooklyn complex.

Along with already allocated city cash, the federal money will help upgrade 145 elevators in 11 developments.

"It's a very good sign," said Wilma Brito, a wheelchair user who says she's often trapped in her 10th floor apartment in East Harlem's George Washington Carver Houses.

Bloomberg offered no guarantees that the problem will be solved completely.

"Elevators do tend to be fickle," he said.

Report shows multiple problems at Tennessee center for people with intellectual disabilities

From the Jackson Sun in Tennessee:

The Winfrey Center in Trenton has had at least 13 substantiated complaints of abuse and neglect of its mentally disabled residents since 2006, according to information provided to The Jackson Sun by state agencies.

The facility also has received poor marks for its management, bookkeeping and the medical care of its residents in reviews by a federal court monitor who began surveying the facility in 2007.

The Winfrey Center's managers say they do not think the number of substantiated complaints at the facility is overly high. But a retired administrator from a facility that provides similar care in East Tennessee said the percentage of complaints substantiated at the Winfrey Center according to one state agency's records is troubling.

Managers at the facility also said they think their plans to empty the 84-bed facility into 21 group homes to be built in Gibson and North Madison counties could greatly reduce the situations that create conflict and other problems at the Winfrey Center. The institutional-style facility has operated in Trenton for about 30 years and is designed to care for mentally disabled people with the highest medical and behavioral needs.

The Jackson Sun made public records requests with two state agencies involved in oversight of the Winfrey Center. The Division of Mental Retardation Services provided limited information about investigations that have occurred at the Winfrey Center since June 2008, when Mental Retardation Services became more involved in such oversight. The Department of Mental Health and Developmental Disabilities provided some records on investigations conducted between the beginning of 2006 and spring 2008.

A review of the information and the court monitor's January 2009 report found that:
Much of the Winfrey Center's care was found to be flawed last fall, despite a management overhaul last spring, according to the court monitor's report.

Residents' conditions and personal issues were not correctly tracked in records, and medical issues also were not properly reported, according to the report.

In some instances, medical problems - potential and diagnosed - were not addressed. One resident went five years without glasses needed for an eye condition, and a female resident had no follow-up exam scheduled for her more than two and a half months after a growth was found in her breast, according to the report.

Problems were substantiated in seven of 21 investigations conducted by the Division of Mental Retardation Services between June 1, 2008, and March 23, according to officials with that agency.

Two of the substantiated complaints were for physical abuse, and the remaining five were for neglect in either supervision or treatment.

Two investigations were still pending as of Friday, officials said.

Mental Retardation Services began receiving such complaint reports after March 1, 2008, as part of a transition period to its stepped-up oversight role at the facility, but did not begin investigations until June, said Missy Marshall, a Division of Mental Retardation Services spokeswoman.

Mental Retardation Services officials refused to release records that would provide details of their investigations, saying the records are confidential under state law because they contain identifying information on specific Winfrey Center residents. A lawyer for the state press association disagrees with that interpretation of the law.

Six of 18 investigations conducted by the Department of Mental Health and Developmental Disabilities between 2006 and spring 2008 substantiated reports of verbal and physical abuse at the facility.

That department provided the newspaper with some investigation records, redacting information that could identify residents and their specific conditions to comply with state confidentiality protections on medical and mental health records.

The department later refused to provide further supporting documents that were erroneously omitted from records sent to The Jackson Sun. In refusing to release the documents, department officials cited state law protecting information on the identities and services used by mentally disabled people.

The records the agency released reveal a troubling number of substantiated complaints at the Winfrey Center, said Hal Baker, a former chairman of the Tennessee chapter of the American Association on Intellectual and Developmental Disabilities.

"Reports are healthy. Substantiations are not," said Baker, who retired in February from the Orange Grove disability facilities in Chattanooga.

"A 30 percent substantiation (to) complaint (rate) says you gather your troops around you and say, 'Hey guys, we've got work to do,'" Baker said.

The court monitor's report notes "ongoing concerns" about the facility's incident reporting, though management changes have led to noticeable improvement.

The Winfrey Center is cited in half of the substantiated reports investigated by the Mental Health Department for not properly or quickly reporting complaints of physical or verbal abuse.


For example, Mental Health investigators note that Winfrey Center officials reported a March 2006 incident that led to an employee's firing as "mistreatment and threatening of an individual" but should have reported it as physical and verbal abuse.

Some details of the incident - in which an employee goaded a resident into a fight by shouting, "Come on and get you some!" and pumping his fist in the air - were not reported to the state until three weeks later, a Mental Health Department report says.

In 2007, the Winfrey Center became subject to reviews by a court-appointed monitor that stem from a lawsuit filed in the early 1990s over conditions at Arlington Developmental Center in Memphis. The facility was included in the monitoring because Winfrey Center residents, due to their condition and location, could have been admitted to Arlington, which is operated by the state.

The Winfrey Center has not fared well in the court monitor's reviews. Out of a possible score of 36, it received a grade of 8 in a 2008 review report released in January. The facility also had done "extremely poor" on an ungraded review from the year before, the report says.

The more recent review found poor bookkeeping, with some important documents containing incorrect identifying information and wrong or contradictory details on specific residents' conditions. Some nursing records made it appear that some residents had not been given several doses of important medication, the report says.

The report also noted flawed management. No plans had been made to address one resident's tendency to sexually force himself on other disabled people with limited functional ability. His three roommates seemed to fit that description, the report says.

The Winfrey Center went through a management change about a year ago, bringing in a new administrator who the report says seems to be working to resolve many of the facility's problems.

Kathy Boone, who was a Winfrey Center administrator until 2006, blamed many of the problems on "very raw" employees who did not have enough supervisors making sure they were following regulations and adhering to training.

Boone is now director of operations for Developmental Disability Management Services, the Collierville company that manages the Winfrey Center. She said several additional supervisors and other care staff have been added to the center in the past year. Boosted payouts from the state have helped cover additional costs, she said.

"The very, very basics were met, and the basics could have been better," Boone said. "And they are better now."

Winfrey Center managers say they do not tolerate abuse committed by employees. They say they quickly punish offenders and try to train often-inexperienced new hires to avoid situations in which they might lose their composure.

But they say gauging how many substantiated complaints are a sign of trouble is too subjective. The number and sensitivity of abuse regulations and other rules meant to protect their residents can drive up the number of complaints, they say.

"In our world, there's 700 citations we can be cited for every time we walk in our door," said Terry Swatley, president of the company that manages the Winfrey Center.

Baker, the former state disability association chairman, agreed that stricter regulations enacted in the four decades he worked in disability care likely have caused an increase in the number of complaints reported each year. "The things we used to do in the '60s are now considered abuse you can be prosecuted for," he said.

Still, he said the rate of substantiated complaints at the Winfrey Center sounded too high and likely should have resulted in a review by management of the facility's employees and how they operate.

Turnover is a persistent issue at the Winfrey Center and similar facilities, Swatley said. He said many of the workers hired at the facility are largely unskilled and inexperienced, either because of youth or lack of familiarity with the needs and conditions of the mentally disabled.

"Let's face it: The direct care worker is not the person who is going to build rockets," Swatley said. "They're under educated. They're generally going to be poor, and this is a skill and a job they can grow into."

Boone estimated that one-third of the employees at the facility have worked there less than five years.

Many hires are inexperienced people who supervisors think can be trained to be effective caretakers, Boone said.

"People become overwhelmed, and they resort with something they might do with one of their own children or a family member," Boone said. "I don't approve of spanking children, either, but people do it and it's socially acceptable ... But it's not in this business."

To minimize that kind of response, Winfrey Center employees have 10-day orientation periods and undergo regular training meant to prepare them for managing groups of disabled residents, as well as unruly residents who might curse and become physically abusive.

"Sometimes )employees) get angry, and they may lash out," Boone said. "That's why we try to set up an environment where people don't become angry."

That training does not always work.

In a 2006 incident detailed in the Mental Health Department records, an employee was attacked while trying to break up a fight between two Winfrey Center residents.

Riled, the employee complained, "I am not going to keep getting beat on every day." An upset resident told him, "Don't say that. You don't need to say that."

According to statements by witnesses, the employee became more incensed, pumping his fist in the air and screaming, "Come on and get you some!" The resident lunged at the employee. A witness told investigators that, after the short fight that followed, a nurse had to restrain the employee but not the resident.

Witnesses said the employee screamed, "These people aren't mentally retarded; they're (expletive) crazy."

When questioned by investigators, the employee could give no reason why he thought the resident was trying to attack him. He was soon fired.

During interviews, Winfrey Center managers ask potential hires how they would react in extreme situations, Boone said.

But, "Really there's no test to say that this person is going to go off in this situation," she said. "We train folks, but we can't predict."

Half of the six substantiated complaints in the records provided by Mental Health cite Winfrey Center managers for not properly reporting incidents, including a January 2008 incident in which a program supervisor was fired for hurting a resident's hand.

In that case, the resident was not taken to the hospital for the "sore and swollen" hand until the day after the resident first reported being hurt, according to a Mental Health report. Doctors found no serious injury.

The state report says the supervisor and the resident were the incident's only witnesses and that there was a lack of corroborating evidence on the circumstances of what happened. An internal investigation reported that "evidence taken as a whole paints a picture of 'He said, she said.'"

But the state's report says investigators concluded the incident did happen and chides Winfrey Center employees for not following the facility's abuse reporting policy.

Mental Health officials determined the Winfrey Center properly reported an April 2008 incident in which a female employee cursed at an unruly resident, according to a state investigative report. But the employee, who was retained after receiving a verbal reprimand, volunteered to an investigator that sharp tensions between residents and staff had provoked a subversive culture of abuse by employees.

"I won't name names," she said, "but there are employees who talk real bad and curse clients. If I felt like the clients would be physically harmed, I'd report it, but this is not the case."

She added: "I have heard (employees) say to patients (that) if they hit them, they would get them back, and many more threats. But none of this would ever happen if y'all didn't leave them to think it was OK for them to hurt us because we can't defend ourselves or we'll go to jail."

The employee said residents regularly mocked employees, bragging that they could attack employees knowing the employees could not fight back.

Swatley and Boone both painted that employee's comments as likely a defensive reaction to being investigated.

Baker said that, given the intensity and sensitivity of rules in facilities such as the Winfrey Center, complaints by upset employees probably can skew the volume and perception of problems at a facility.

"I think there's been kind of a false sense of occurrences because of the sort of 'get-back-at-you' accusations, and it's really hard to know how many of those" are among the total incidents reported, he said.

Owners and managers of the Winfrey Center plan to eventually move the facility's operation into 21 group homes that will be built in mostly residential areas of Gibson and Madison counties.

Construction is expected to begin as soon as next month on homes in Gibson County, said Swatley, president of the company that manages Winfrey. Two of 14 facilities planned for Gibson County did not receive certification from the state Health Services and Development Agency, which the company is appealing, Swatley said.

Seven facilities that will be built in North Jackson, Oakfield and Three Way in North Madison County were approved on Wednesday, a development agency official said. Construction likely will begin on those facilities in late summer, Swatley said.

The overall project is expected to take 16 months to complete, he said.

Winfrey managers say their move to group homes likely will reduce the chances of more problems like those cited in the complaint reports provided by the state - mainly by shrinking the number of disabled residents whom employees must monitor and care for each day.

Winfrey Center managers say legal protections and state and federal pushes to move the Trenton facility's population into new facilities make it unlikely the group home project will be stopped. Residents in Gibson County and North Madison County communities have protested the project, accusing builders of trying to sneak the homes into their neighborhoods without the input and permission of surrounding
residents.

Although Winfrey Center operators say research has shown group homes do not degrade property values, residents have refused to believe that. Some also have confused mental disabilities with potentially dangerous mental illnesses, saying they are worried about the threat group homes pose to themselves and their children.

Ron Barger, 61, lives near a home planned to be built on Windale Drive in North Jackson. He said he was not overly bothered by the complaints alleged and substantiated against the Winfrey Center.

"It's understandable that you're going to have those sort of activities" at a facility such as the Winfrey Center, he said.

He had questions about how freely those cared for in the facility will be allowed to move around his neighborhood but said he was most concerned that the group home would be too large and would not fit in with surrounding homes.

"That's going to stand out like a sore thumb in the neighborhood," he said. "... It destroys the whole concept of a single-family residential neighborhood, and when you do that, the property values go down in a like manner."

State officials and group-home builders have maintained the key reason for the move is that people with mental disabilities are more likely to thrive in a safe, residential environment. The Winfrey Center and any similar institutional facilities are a few decades out of date, said Baker, the former state disability association chairman.

"Folks with this level of difficulty can flail out, throw something and be difficult if someone else gets in the way," Baker said. "You've kind of got to think of it as your own family ... You got eight kids? Whoa! And if you have got 84 people, it becomes very hard to comply with contemporary standards in a facility that large."

Swatley agreed.

"One or two people having a bad day is easier to handle than several people having a bad day," he said.

In her January report, court monitor Nancy Ray says there is "considerable promise" in the group home plans of the Winfrey Center's managers. "It will fill a significant gap in services for persons with profound disabilities in this area of West Tennessee," Ray writes.

But she also notes that the care will have to be far better than it has been in the past couple of years to fulfill that promise.

"A Nervous Smile" called provocative, poignant

I saw this John Belluso play April 25 and agree with most of this review. There were some weak spots, especially at the end, but mostly it was a powerful play that has a true disability "voice." (The picture shows Nicholas Viselli and Marilee Talkington.)

The TheaterMania review by Dan Bacalzo:

A married couple plots to abandon their disabled child in John Belluso's provocative play, A Nervous Smile, now receiving its New York premiere at the Kirk Theatre in an uneven production from Theater Breaking Through Barriers. While Belluso's dark comedy can be very funny, some of the work's humor is blunted in this imperfect, loosely paced staging by director Ike Schambelan.

The late playwright, who was himself disabled, crafted a compelling tale of moral complexity. Brian (Nicholas Viselli) and Eileen (Pamela Sabaugh) are weary of caring for their (unseen) teenage daughter Emily, who suffers from cerebral palsy. They hatch a plan to free themselves of the responsibility of taking care of her, with their scheme also involving Nic (Marilee Talkington), a single mother whose son also has cerebral palsy, and Blanka (Melanie Boland), Emily's elderly caregiver.

Neither Viselli nor Sabaugh are able to bring much depth to their roles, although the latter shows a few more shades to her work in her final scene. Unfortunately, Sabaugh is never able to convincingly convey the effects that too much alcohol and Vicodin has on Eileen, instead indicating her woozy state in too obvious a manner. Talkington does a much better job at capturing the nuances of her character; her non-verbal reactions speak volumes, and she appears emotionally connected to the material at all times. In particular, a stirring confessional speech that Nic makes about losing her temper at her son is uncomfortable to sit through precisely because the actress brings out both the anger and self-loathing that drives the monologue. Boland, who possesses a vibrant stage presence, provides some of the play's funnier moments as she emphasizes Blanka's eccentricities while still managing to show her character's genuine concern for Emily. However, all of the actors tend to step over some of their laugh lines, and don't hold other moments when a brief pause could be
effective.

As he did in many of his plays, Belluso calls attention to the intersection between disability and class, demonstrating the advantages that Emily has over Nic's son partially because of Eileen's wealth. While the playwright makes it clear he doesn't condone the plan hatched to dispose of Emily, he also allows empathy for the frustration these parents feel in giving their lives over to the care of a child who will always need more than they can give. And despite the production's shortcomings, the play's ending is poignant and powerful.

California town sued over lack of disability access in new downtown improvements

From the San Diego Union-Tribune:

ENCINITAS, Calif. — Disabled-rights activist Dennis Sharp has sued Encinitas in federal court, saying the city's downtown street improvements ignored the needs of people like him who use a wheelchair.

In 2002, Encinitas completed a $5.2 million downtown Streetscape project that brightened up the commercial district with new sidewalks, medians, green benches and palm trees along Coast Highway 101 between A and F streets. Plans to extend the work south from F to K streets were put on hold.

In U.S. District Court documents filed March 5, Sharp said that when the city installed those improvements, it neglected to add enough accessible parking for disabled people who wish to shop and dine in Encinitas.

In most cases, the city installed curb cuts only at street corners, so there are no ramps connecting street parking spaces to the sidewalk.

Sharp contends the Streetscape project violates state law and the federal Americans with Disabilities Act of 1990, both of which prohibit discrimination against disabled people and set access standards for new or renovated buildings.

“With everything they've done along that main street, there's nothing there for wheelchairs,” Sharp said in an interview April 24. “Somebody was not doing their homework when they did this.”

The Encinitas City Council met April 15 in closed session to discuss the case. City Attorney Glenn Sabine declined to comment April 24 on the pending litigation, not wanting to jeopardize the city's position.

The lawsuit seeks: a court order to add disabled parking and curb cuts; the removal of barriers to certain buildings; an order requiring Encinitas to stop its “discriminatory policies” and requiring the city to ensure that future projects provide access to the disabled; damages and court costs.

Sharp, 69, is a Del Mar resident who has used a wheelchair since 1966 after suffering brain damage during an operation on his throat. He is a retired art director for an aerospace company who has worked with San Diego, Del Mar and the Del Mar Fairgrounds on access issues.

During a recent trip to downtown Encinitas with his wife, Joanne, Sharp demonstrated his difficulty in getting around on Coast Highway 101.

From D Street to E Street, for example, there's plenty of diagonal parking, but not one blue-striped parking space for the handicapped, and no ramps from the street to the sidewalk. A person in a wheelchair using a regular parking space would have to risk wheeling alongside traffic to the end of the block to get back onto the sidewalk.

There are handicapped-parking spots behind some of the businesses, but many are too small, Sharp said.

The federal Americans with Disabilities Act has led to many lawsuits against public agencies. In 2003, the city of Sacramento settled a lawsuit by agreeing to dedicate 20 percent of transportation funds for the next 30 years to improve sidewalks, crosswalks and curb ramps.

In 2002, Sharp sued Del Mar over access to Powerhouse Park. His lawsuit led to an investigation by the state attorney general, and Del Mar officials agreed to correct violations throughout the city, from widening doorways to increasing the number of handicapped-parking spaces. The city also paid Sharp $80,000; all but $10,000 went to his attorney.

Sharp said the Encinitas lawsuit was a last resort after he tried unsuccessfully to advise city officials on the problems. He said he has served on several citizens advisory committees, including those that guided the development of San Diego's Petco Park and the design for a new grandstand at the fairgrounds in Del Mar.

Sharp is not to be confused with San Diego attorney Theodore Pinnock. Pinnock, who has cerebral palsy and uses a wheelchair, has become notorious for suing dozens of store owners throughout the county, demanding changes to their businesses and cash settlements.

Sharp disapproves of Pinnock's tactics, saying: “That guy has made (disabled activists) look like leeches.”

He pointed out that his lawsuit targets the city, not individual businesses. “It's the city's fault, and they should fix it,” he said.

Wayne Landon, government relations director for the Cal-Diego Paralyzed Veterans Association, said that access issues are still common, although he's not familiar with the situation in Encinitas.

“I've been to a lot of different places where I couldn't go into a certain restaurant or a store because of access,” Landon said.

Landon says that federal law is clear in requiring cities to provide access to public facilities.

“I've mostly worked with the city of San Diego and the last couple of years they've put a lot of money into it,” Landon said. “For a lot of years it was really low priority. Because of lawsuits, it became a higher priority.”

Autism numbers on the upswing in Kansas schools

From the Topeka Capital Journal in Kansas:

The number of children with autism enrolling in Topeka Unified School District 501 and other Kansas schools is increasing each year, school officials say.

And that means more money must be funneled into providing services for them.

On Dec. 1, 2008, USD 501 officials reported to the Kansas State Department of Education that 84 students with autism were enrolled in the district’s schools. In December 2001, that number was 56.

Statewide, the number of public school students with autism went from 846 in 2001 to 2,223 in 2008.

Karla Denny, director of communications for the state education department, said the state spent $6,137 above the base state aid per pupil for each student in special education during the 2007-08 school year.

“That may be more or less, depending on the services provided to the student,” Denny said.

The base state aid per pupil is $4,374, bringing the estimated total cost for each student in special education to $10,511.

Autism advocates and teachers say the mounting cost of educating children with autism — now and in the future — can be curbed with early intervention and therapies before the child enters kindergarten.

“The cost of treatment can be reduced by two-thirds with early diagnosis and intervention,” Marlene Graber, an autism consultant with Topeka public schools, said at a recent inservice program.

According to state education department records, the other school districts in Shawnee County also have seen increases in the number of students with autism from 2001 to 2008: Shawnee Heights USD 450, 6 to 13; Seaman USD 345, 6 to 28; Auburn-Washburn USD 437, 15 to 40; and Silver Lake USD 372, 1 to 6.

School districts near military bases are reporting marked increases in the number of children with autism. According to the Pentagon, the incidence of autism in military families is 1 in every 88 children, higher than the 1-to-150 ratio for nonmilitary families.

Ricardo Vieyra, director of the special education program for Geary County USD 475, said the district reported 47 children with autism on Dec. 1, 2007. A year later, the number had grown to 65.

The district includes Junction City, Fort Riley, Milford and Grandview Plaza.

Vieyra said 52 percent of the students in the school district come from military families.

“I don’t know if I can say that the chances (of autism) in the military are higher, but we have our share of military families who moved here and who have autism,” he said.

Vieyra said he compared the state’s largest school districts in regard to the number of students with autism served. He looked only at school districts that have their own special education programs, thus excluding districts assisted by special education cooperatives.

“Geary County had the third-largest percentage of students with autism,” he said.

The other top districts were Lawrence USD 497, which reported 108 children with autism on Dec. 1, 2008, and Manhattan-Ogden USD 383, which reported 90.

State education department records indicate Fort Leavenworth USD 207 has seen the number of students with autism jump from 3 to 23 since 2001, while Leavenworth USD 453, which also serves military children, has experienced a 3-to-21 increase.

Hawaiians with disabilities face unemployment woes

From The Honolulu Advertiser. In the picture, at the Lanakila Pacific life skills training facility on Bachelot Street, employment training instructor Cheryl Sabey works with trainee Gerald Ching in the packaging area.


Like a growing number of Hawai'i residents, 24-year-old Brandon Young needs a job.

He's scoured depressingly meager help-wanted ads. He's hit the pavement hoping to find something — anything — to generate a paycheck. But like so many other would-be wage earners these days, Young hasn't been able to get a break.

But Young isn't like the other highly motivated applicants with whom he competes. Diagnosed with the degenerative eye disease retinitis pigmentosa at age 10, Young is legally blind.

Young's travails in securing basic, entry-level employment underscore what many believe to be worsening employment prospects for people with disabilities, who have traditionally suffered significantly higher unemployment rates than nondisabled workers.

At the same time, state budget cuts are draining money from the vocational programs the disabled need to train them for the workforce.

From October 2008 through March of this year, the national unemployment rate increased from 5.9 percent to 8.9 percent, according to the U.S. Department of Labor. Over that same span, the unemployment rate for people with disabilities increased from 11.1 percent to 13.1 percent, with a high of 14 percent in February 2009.

The state Department of Labor and Industrial Relations does not specifically track unemployment figures for people with disabilities. The state jobless rate in March was 7.1 percent, the highest in 31 years.

While the national figures indicate that the rates of unemployment for disabled and nondisabled workers have risen in step, organizations that work with Hawai'i's disabled population say the economic downturn has put disabled workers in a particularly precarious position.

"When the economy is bad, the impact is usually felt most by anyone on the fringe or anyone in a marginalized group that needs extra support or assistance," said Robert Stodden, director of the University of Hawai'i Center on Disability Studies.

The Americans with Disabilities Act precludes employers from discriminating against people with disabilities.

"It's not legal to take (a) person's disabilities into account in hiring decisions, but it happens, even if doesn't happen directly," Stodden said. "If you have 20 applicants and one with a disability who needs accommodations or adjustments, the typical response (from employers) is to hire one who doesn't have any of those. As the pool of qualified applicants increases, people on the margins tend not to be selected."

Stodden said a potentially bigger problem is the effect the economy has had on funding for agencies that provide vocational training for people with disabilities.

Even when the economy improves, the disruption in vocational training is likely to have long-term implications for people with disabilities.

"These budget cuts will have a negative effect on programs that provide support, through accommodations or job coaches, to people with disabilities who are trying to get jobs," he said. "Hawai'i is behind the rest of the country in unemployment ... but we'll lag behind the rest of the country in recovering, as well."

Recovery may be even further off than initially feared.

Last October, the state Department of Human Services' cash-strapped Vocational Rehabilitation and Services for the Blind Division implemented an "order of selection" that limited vocational rehabilitation services to those in greatest need, effectively shutting out scores of new and existing clients with disabilities.

On Thursday, with its Basic Grant allocations already nearing the limit, the division sent a letter to several community rehabilitation programs informing them of their worsening economic straits.

"Out of necessity," the letter read, "we have issued instructions to staff that are restraining and restrictive with the remainder of the grant to continue services for as long as possible in this fiscal year and until the receipt of new grant funds."

The letter, signed by administrator Joe Cordov, outlined several austerity measures, including suspension of all new purchases of goods and services funded by the grant, and a review of ongoing purchases and obligations for possible reduction, cancellation or deferment.

"This unwanted dilemma is expected to affect (vocational rehabilitation) applicants, participants and partners statewide for the duration of the current fiscal year and until additional funds are available," the letter read.

Marian Tsuji, president and chief executive officer of Lanakila Pacific, said her organization has been "hugely" affected by the recent cuts in funding.

Lanakila Pacific provides a wide range of vocational and life-skills training to people with disabilities. Clients typically receive nine to 18 months of training before being placed in jobs. The jobs themselves are typically in low-skill or entry-level positions, many of them part time.

But with rising unemployment, even these jobs are disappearing quickly.

Lanakila maintains relationships with employers who value the reliable, well-trained clients the program produces. But the "order of selection" dictate has severely restricted the number of clients Lanakila can train.

"It's a hard call," Tsuji said. "With a limited amount of funds, how do you make that call?"

Young received vocational and life-skills training from Ho'opono, a state program for the blind and visually impaired, and is capable of performing just about any entry-level task a sighted person can.

But with the economy in disarray and a growing number of qualified (and over-qualified) workers competing for fewer openings, Young believes he has been excluded from consideration for some jobs specifically because of his disability, despite protections guaranteed by the Americans with Disabilities Act.

Young's latest frustration came when he dropped in on United Cerebral Palsy hoping to find work as a telephone solicitor.

What happened next is in dispute.

Young said he interviewed for the job and was told he wouldn't be hired because he couldn't see the computer monitor.

"At first, I just walked out, but then I thought, 'Heck no,' " Young said. "An organization like that is supposed to help and support people with disabilities."

But Nancy Sandell, a UCP manager, said there were no openings at the time. She acknowledged that Young visited the office and that she showed him what one of the jobs entailed, but said that he neither interviewed nor applied for employment.

Sandell said her office has employed numerous people with disabilities and has previously made accommodations for a visually impaired employee.

"If we had an opening and he applied, of course he would have been considered," Sandell said.

Whatever the case, Young, who is taking online courses from San Diego State University in hopes of improving his prospects of working in vocational rehabilitation, said the stress of not finding work at UCP has been compounded by the realization that being disabled in a depressed economy leaves little hope for finding gainful employment any time soon.

"I'm willing to work," he said. "I just need to find a job."

Kitty McGeever first blind actress on a British soap opera

From The Telegraph & Argus in the UK:

Bradford actress Kitty McGeever (pictured) has made soap history by becoming the first blind actress in a British soap.

Kitty, who lost her sight months after her baby was born prematurely, plays wayward ex-con Lizzie Lakely in the hit Yorkshire drama Emmerdale.

Kitty, from Wyke, landed the role after producers saw her one-woman comedy show, Luvvie’s Blind, based on her experiences of being blind.

“They invited me to get involved at the character development stage, we talked about the way disabled people are portrayed on TV and how we could do that differently,” she said.

Kitty is thrilled to be playing British soap’s first blind character.

“I thought my acting career would be over once I lost my sight,” she said. “Every day I come up against stereotypes, people say I’m not what they imagine a blind person to be like. I’m just a person whose eyes don’t work.”

Kitty, 42, works with two assistants on Emmerdale. “One takes me to wardrobe then we talk about my scenes and they guide me on to set,” she said. “Sets are quite dangerous, with cables and ladders, so they’re vigilant guiding me around. My assistant walks through scenes with me so I know distances then they stand back when I go for a take. They write down my schedule and record it, with my scripts, on a dictaphone.”

Kitty describes Lizzie as “naughty but nice”. “She’s irreverent but has charm. She’s a joy to play. She arrives in Emmerdale on community service and gets her feet under the table. She’s always looking for money or the next free meal. She struggles but she’d never let you know. I love it, it’s the best job I’ve ever had.”

Kitty, who was diagnosed with diabetes aged 19, finally has reason to smile again, after suffering a series of devastating experiences since her sister’s death from meningitis.

Seven years ago Kitty fell pregnant and pre-eclampsia led to her baby, Felix, being delivered early, weighing just 3lb. While Felix was battling for his life, Kitty started getting blurred vision.

“I went to the eye clinic and they said I was going blind,” she recalled. Within months, she lost her sight and her health deteriorated. “My body swelled with fluid. My blood pressure and diabetes were out of control.”

She and her baby were wards away from each other in hospital. Felix died, aged 15 months, after suffering respiratory problems.

Kitty later suffered kidney failure, leading to a kidney and pancreas transplant. “I felt well for the first time in a long time and I wanted to work again,” she said.

“My parents had been through the loss of a child and they were a terrific help. You can come through that and live life again, however long it takes. I take inspiration from my little boy. If I let his death be the end of me, I’d be doing him a disservice. I was very grateful to have him.”

Kitty’s first Emmerdale appearance is on April 28, ITV at 7 pm.

Australian elementary school uses "cage" for students with autism, other disabilities

From Adelaide Now in Australia:

Disabled students at an Adelaide Hills primary school are being dressed in fluoro vests and sent at breaks to a "caged" playground for their safety.

The startling practice has been revealed by a concerned parent, Jade Brook, who says the same school also has failed to protect her son Michael, who has autism, from being bullied.

Mt Barker South Primary School has fenced a schoolyard play area - dubbed the "cage" by some parents - so younger students with special needs can be properly supervised.The juniors are also being dressed in bright fluoro vests - similar to those worn by council workers - so teachers can monitor them during recess and lunch breaks.

The school has defended the policies, saying it has no boundary fencing, and the vests have the backing of the school community. But some parents and autism advocates have labelled the practice "disgusting" and say it will only make the children bigger targets of bullying.

The school is a mainstream campus but has two classes for students with special needs, such as autism, epilepsy and vision impairment.

Could a planned Massachusetts bill restrict the sexual rights of people with disabilities?

From The Boston Globe:


State Representative Kathi-Anne Reinstein thought she was sponsoring a bill to protect a vulnerable population from sexual predators.

But the legislation has fueled a firestorm of protest, locally and nationally online,
mostly from senior citizens and people with disabilities who said the bill could
criminalize their right to sexual expression.

The bill, an amendment to the state's laws prohibiting child pornography, was meant to protect people with mental disabilities, who cannot give consent and are often exploited sexually by caretakers or family members, said Reinstein, a Democrat from Revere.

Reinstein said she was approached in January by Elizabeth Scheibel, the district attorney in Hampshire County, and the state Disabled Persons Protection
Commission which described several disturbing cases.

"Basically, there's an issue of caretakers taking explicit photographs of elders and people with disabilities against their will," she said in a phone interview.

After consulting with advocacy groups about the legitimacy of the problem, Reinstein said she agreed to sponsor the bill. But it was written, she said, by a legislative committee, and the language is what has spurred the controversy.

Part of the bill states that people over age 60 and people with disabilities who have been declared mentally incompetent cannot give consent to erotic photographs, any more than a minor can give consent. But other parts of the bill only use the term "elders and persons with a disability," without referencing mental competence or consent.

As a result, said University of California-Los Angeles law professor Eugene Volokh, the bill could be interpreted as banning competent, consenting couples with disabilities from taking nude photographs of each other, or lovers over age 60 from making saucy pictures of themselves.

"If the law was limited to [the mentally incompetent], I wouldn't be mocking it," he said, adding, "let me be more academic: I wouldn't be condemning it as I have been."

To his knowledge, Volokh said, no other state has a law that criminalizes sexual pictures of senior citizens or adults with disabilities regardless of consent.

Volokh said a contact sent him news of the bill, which he wrote about on his legal blog, www.volokh.com. "Hard to see how this would be constitutional, or why it would make much sense," he wrote.

From there other bloggers took up the cause.

"Reinstein's law goes way too far," wrote Florida lawyer and blogger Marc Randazza. "Under this law, if my mom and dad want to set up the ol' video camera in their bedroom and make some in-home entertainment, they would be looking at 10 or 20 years in prison."

The bill seemed particularly goading to people with disabilities, who often have been stereotyped as asexual or childlike.

"This kind of bill does perpetuate that stigma . . . that once you reach a certain age, or if you have a disability you are no longer sexually attractive, no longer able to have an intimate relationship," said Stanley Ducharme, a Boston psychologist who specializes in sexuality and disabilities. "The whole thing smacks of the idea that there's something negative about sexual expression and seeing an erotic image of an elderly person or a disabled person."

Judy Norsigian, executive director of the Cambridge-based women's health collective Our Bodies Ourselves, said the bill, as it's written, blocks free expression.

"This is legislation that's trying to protect a vulnerable population from abuse," she said. "But it has to be carefully worded so as not to infringe on free speech rights."

As word of the bill spread, calls and e-mails began to inundate Reinstein's office.

"I was kind of blown away," she said. "We got a lot of e-mails from people who were technically classified as disabled, saying, 'How could you take my rights away?' "

She said she'd intended the bill to address solely nonconsensual exploitation.

"I'm not criminalizing sexual activity between consenting adults," she said. "In no way shape or form was that the intent of it. . . . If there's people who on their own will want to go and participate in this stuff, knock yourself out."

The vehement reaction prompted the Disabled Persons Protection Commission to place a disclaimer on its website, explaining that the bill "is targeted to address only the sexual exploitation of legally incompetent elders and persons with disabilities and . . . legally competent elders and persons with disabilities who do not consent" to erotic photographs.

"The intent was not to criminalize people who are competent to make decisions," said Emil DeRiggi, the commission's spokesman.

The bill, which was cosponsored by representatives Frederick Berry, Benjamin Downing, Thomas Kennedy, and Pam Richardson, is currently before the House judiciary committee.

Because of the protests, the bill's language will probably be changed before it comes to a vote, Reinstein said.

"If there are all these people who are questioning it, you have to take notice of that," she said. "And it makes sense that consensual rights are protected as well."