Joe (pictured) and Mary Thompson had agreed to adopt Emily before her birth in 1999, and it never occurred to them to back out when she was born with spina bifida. But that same year, their residential remodeling business in Overland Park, Kan., went under, prompting job changes that left the family searching for health coverage with a child who was uninsurable.
The insurers were willing to cover the Thompsons and their older daughter, but not Emily, who was later discovered to have mild autism as well, or her 13-year-old brother (pictured), who had a diagnosis of attention deficit disorder.
Starting Sept. 23, the insurers will not be able to do that, as the new health care law prohibits them from denying coverage to children under 19 because of pre-existing health conditions. In 2014, the change will extend to people of all ages.
“It really is a pinch-me moment,” said Mrs. Thompson, who is 50. “Could it possibly be, after all these years of fighting and jumping through hoops and trying to find the right place to help us out, that she could just be put on our policy with her sister and not be discriminated against any more?”
Mrs. Thompson cannot yet answer her question. She is waiting for clear information from her insurer, Humana, about how much it will cost to add Emily to the family’s $565-a-month policy. One agent told her on the phone that rates could be as much as five times normal prices, she said, effectively making Emily just as uninsurable as ever.
The law does not prevent insurers from charging more to cover those with chronic conditions until 2014. Some carriers have responded to the provision by ending the sale of child-only policies.
The Thompsons were fortunate that Children’s Mercy Hospital, across the Missouri line in Kansas City, agreed years ago to take Emily as a charity case for her annual rounds of testing, which run nearly $10,000. They were charged only $10.
But they have lived in fear that Emily would wind up in an emergency room, or that the recession would sap the hospital’s generosity, or that Children’s Mercy would disqualify them if their income rose. Emily had on several occasions been kicked off the state’s Children’s Health Insurance Program because the family’s income nudged just above eligibility limits.
“Every family has a bit of anxiety around tax time,” Mrs. Thompson said. “We’ve had the additional stress of wondering where we fall regarding qualification cutoffs.”
Thursday, September 23, 2010
From The NY Times:
Posted by BA Haller at 10:36 AM