Wednesday, October 29, 2014

Work of outsider artist Judith Scott sheds beautiful light on living with disabilities

From The AP:

NEW YORK — Institutionalized for more than three decades and largely deaf and mute, Judith Scott found her voice through art, forming intricate sculptures of yarn, fabric and other fibers tightly wrapped around an array of found objects.

Born with Down syndrome, the late artist is getting her first solo museum exhibition in the United States. "Bound and Unbound" opens Friday at the Brooklyn Museum featuring 60 of her cocoon-like works.
But the honor would not have fazed Scott, who died in 2005 at 61. It was the creative process — not accolades — that engaged her.

Scott was single-minded about her work. As soon as she finished a piece she pushed it away to signal she was done and immediately moved on to her next project. Found or salvaged objects, everything from fans to shopping carts, gave shape to her wrapping and weaving technique.

Born in Cincinnati, Scott was largely isolated for 35 years until her sister, Joyce, became her legal guardian and introduced her to the Creative Growth Art Center in Oakland, California, in 1987. While Scott had shown no artistic aptitude, Joyce Scott felt the facility for adults with developmental and mental disabilities would be a nurturing place for her.

It took nearly two years for Scott to begin expressing herself artistically, after a teacher brought some textiles to class and Scott picked up some sticks and began wrapping them. From then on, she was given free rein to select her materials. Gradually, her brightly-colored pieces got more complex. Some got quite large including a fiber-encased shopping cart, one of the few pieces where the object is not disguised.

"Her work had nothing to do with art therapy," said Frank Maresca, whose Chelsea gallery champions self-taught artists. "She was born with a gift of creativity" that's about form, color and process — "all the things that contemporary and modern artists are about."

Even though her work has been shown in other museums and art galleries and several major museums own some of her pieces, he said she remains largely unknown to the general public.

Maresca said he was bowled over by her creativity the minute he met her some 20 years ago and immediately decided to showcase her work at his Ricco Maresca Gallery.

"My sister was considered worthless and effectively cast aside for 35 years by society," said Joyce Scott. "It is a tribute to her inner resilience that once given the opportunity she was embraced as an artist of outstanding ability and originality."

But she said Judith Scott couldn't have realized her potential without Creative Growth.

"Judith's life and work really follows the change in disability culture and the arts that we have seen in the past few decades," said its director, Tom di Maria. "For Judith to go from an institution to the highest level of cultural achievement "is a testament to how far we have come."

Co-curators Matthew Higgs and Catherine Morris said the exhibition's goal was to build on the work Scott created for nearly 20 years.

"It's a larger narrative around the question of the relationship between creativity and disability," Higgs said.
The exhibition runs through March 29.

Monday, October 27, 2014

Aussie girl group with disabilities, The Sisters of Invention, on their way to being YouTube sensation

From The Daily Mail in Australia:

A gutsy girl group with a difference have unveiled their first music video which aims to challenge the way intellectually disabled people are often treated like ‘little kids’.

The five stars of The Sisters Of Invention all have learning disabilities, ranging from Foetal Alcohol Spectrum Disorder, Cerebral Palsy, blindness, a mild intellectual disability and Williams Syndrome.

They also all have fantastic voices – with Annika, who is blind, possessing pitch-perfectness, a skill envied by musicians around the world and singer Aimee’s Williams Syndrome working in her favour, with hyper-musicality an attribute of her disability.
In their first professionally produced release called This Isn’t Disneyland, Aimee, 28, is dressed as Snow White, Annika, 28, is Cinderella, Caroline, 29, is Tinkerbell, Jackie, 25, is Pocahontas and Michelle, 24, is Rapunzel – but it is no fairy-tale dress up competition, they are making a clever point.
In the catchy electro-pop tune the Adelaide-based band sing: 'This isn't Disneyland I'm not a novelty this is a real as it gets.' 

‘Sometimes people treat us like we are little kids. We wanted to say we are not; we are more than disabled people. The video goes to show we are not novelties,’ Aimee told Daily Mail Australia.

‘We are here to change opinions of disabled people in general,’ she added.

The band’s producer Michael Ross, who worked with the five women to write the songs on their upcoming album, said people have been surprised by the video.
‘When people think about a girl group with learning disabilities they paint a picture in their mind straight away.
‘But when they watch it they see it is not “second class”, they see it’s not “s**t” and they are surprised and they are like “oh my god I actually like this.”, he explained.
‘We want people to really like it and get something out of it.’

Michael has been working with the band for four years, to get them to the point where their natural musical talents have created broadcast standard records.

The Sisters Of Invention describe their music as alternative pop and they write all of their songs from personal experience – both the happy and the heartbreaking.

One of the brave stories of how they wrote their songs comes from Jackie, who has Foetal Alcohol Spectrum Disorder.

During the writing of their tenth song, she came into the studio with the heartbreaking news that her cousin who was ‘as close as a sister to her’ had committed suicide. She was just 14-years-old.

‘Heidi had lived with us since she was a baby and committed suicide. We weren’t expecting it. So we wrote a song about Heidi, it’s called Tsunami Of Kites,’ Jackie said.
‘For a singer-songwriter to sit down and be brave enough to use that story and that experience in a song is incredible.

‘To put your ultimate truth and honesty directly in to those lyrics, there is nothing childish about it,’ Michael explained.

Meanwhile, Annika used the time when her school principal told her parents she would never be able to learn anything as the basis of another song. 

Michael said when people talk about intellectual disability they start saying words like ‘retard’ and ‘infantile’.

‘They think that you will forever be a child. So for these girls to actually be singing gutsy, blatantly honest, emotionally mature songs and to sign them so beautifully that in itself is enough to make people go “oh”.’
He hopes that next time people talk to someone with a learning disability they instead think ‘I have no idea what your are capable of, you might be able to do something just as amazing as The Sisters Of Invention’.

‘Here are five women who actually have a career as singer song-writers,’ he added.
The women have all been singing separately for years but got together as a group three years ago and named their band The Sisters of Invention ‘because we are all sisters and support each other and that’s what friends do,’ Aimee explained.

Annika added: ‘We are reinventing the rules of how people see us and so people can see us for what we are capable of instead of what we are not.’

The Sisters of Invention are from an Adelaide-based arts organisation called TUTTI, which gave them a chance to develop themselves professionally. Follow The Sisters Of Invention on Facebook and download their first single on iTunes.  

Thursday, October 23, 2014

How tech advances are helping innovators develop more accessibility tools for people with disabilities

From GeekWire:

Inside a small office on the sixth floor of the University of Washington’s computer science building, Richard Ladner starts talking about Google’s self-driving cars (pictued). The longtime professor is so excited about the innovation that he lets out a big laugh.

But Ladner isn’t joking around — rather, he’s jazzed up about a better future for people with disabilities.
“This is an accessibility tool,” Ladner explains. “Can you imagine a blind person taking their cane, walking to the car, telling it where to go, and it goes there? I think that’s going to happen.”

Using technology to help people with disabilities isn’t a new phenomenon, from the advent of speech recognition systems, to hearing aids, to power wheelchairs — the list goes on and on.

But Ladner and his colleagues say there’s been a recent increase in attention to the assistive technology, which is encouraging, because they also think that there’s much more that can be done.

“There is a lot of room for this space to grow,” said Ladner, who’s dedicated more than a decade of his life to accessibility research.

That’s the same sentiment shared by Jenny Lay-Flurrie, a senior director at Microsoft who leads a team that focuses on accessibility, privacy, and online safety. Last week, Lay-Flurrie was in Washington D.C. where she was among ten people from around the nation who were honored as the 2014 “Champions of Change” — people helping to make workplaces more accessible and creating job opportunities for people with disabilities.

“Is there more technology can do? Yes — and that’s what is so exciting about being in the tech industry,” she told GeekWire. “The sky really is the limit.”

Ladner and Lay-Flurrie represent two pillars when it comes to the creation and implementation of accessible technology, from research at places like the UW, to the products built by companies like Microsoft.
But Ladner, who grew up with deaf parents, noted that these innovations haven’t always been of great importance for researchers and companies. For example, Ladner explained that though the first iPhone was a massive advancement for most of us, it left out people with disabilities — particularly those with vision impairments who had relied on physical mobile phone keyboards and were all of a sudden left with a flat touchscreen.

But a couple years after the first iPhone release, Apple decided to get serious about making the iPhone accessible. The company developed voice-enabled tools and other innovations that made the device more usable by people with disabilities.

“It was a company commitment to accessibility,” Ladner said. “That was a turning point, I think. No company had ever done that before.”

Today, most of the big tech companies — from Google to Yahoo — have teams dedicated to building out technology that is accessible to everyone. Lay-Flurrie, who is deaf, leads the Trusted Experience Team (TExT) at Microsoft that focuses on accessibility, while she also chairs the Microsoft Disability Employee Resource Group.

This past July, the winning team of a company-wide hackathon at Microsoft was the “Ability Eye Gaze” group, which leveraged technologies including Microsoft Kinect and Surface to create a series of new features to make it easier for people with ALS and other disabilities to control a tablet with their eyes.

That team worked on the project with Steve Gleason, the former NFL player who has ALS, who also appeared in Microsoft’s first Super Bowl commercial earlier this year. 
Lay-Flurrie said she’s spent a lot of time with Gleason recently and recited a phrase from him when asked about the power of technology helping people with disabilities.

“One of the things he says a lot is, ‘until there is a cure for ALS, technology is a cure,'” Lay-Flurrie said. “It really brings home the power of technology.”

So what more can be done? For starters, Ladner said there needs to be more people with disabilities pursing careers as coders, engineers, and designers — people who know exactly what a disabled person may need in a product.

“They will understand the value of what they are doing,” said Ladner, whose research includes MobileASL and the Tactile Graphics Project. “They will see the nuances.”

For that to happen, Lay-Flurrie said more awareness about disability employment is needed. Companies need to have a strong understanding and approach to hiring people with disabilities, she said.

“That means creating a safe environment where people can self-identify and be honest about their disability and what they need to be successful,” Lay-Flurrie explained. “Then empowering and encouraging them to do more, be more and bring ‘all’ of themselves to work every day. If you empower people to be successful, they will bring that perspective to work and use it to create great products.”

Ladner also noted that more and more researchers are starting to ask disability-related questions when the latest gadgets come out. How would a blind person use Google Glass? How might a deaf person interact with a virtual assistant like Apple’s Siri or Microsoft’s Cortana?

And with the aging baby boomer generation, Ladner said there’s a huge market to tap into for companies — in fact, there are more than 1.2 billion people with some type of disability today.

“I feel like there will be a huge surge in interest for this kind of research just because there’s more customers,” Ladner said.

It’s also important to keep in mind that some of these accessibility innovations actually end up benefitting the entire population. Lay-Flurrie recalled how technologies like talking books or even door handles were at first created for people with disabilities.

“Some of the best products have been designed with disability in mind,” Lay-Flurrie said.

When asked what she’d like to see happen over the next decade in the disability field as it relates to technology, Lay-Flurrie brought up Star Trek. She grew up watching the show and seeing Geordi La Forge — a blind character — use technology to get a leg up on his peers.

“His visor basically gave him the ability to see more than anyone else on the crew — imagine that,” she said. “That’s got to be the goal of technology. Disability is a strength — believe that, and the rest will follow.”

Wednesday, October 22, 2014

Blade runner Oscar Pistorius banned from Paralympics for five years

From USA Today:

LONDON (AP) — Oscar Pistorius will be ineligible to compete in Paralympic events during the entirety of his five-year prison sentence.

The double-amputee South African runner, who has won six Paralympic gold medals, was given a five-year jail term Tuesday for killing Reeva Steenkamp.

Pistorius could be released after 10 months to serve the remainder of his sentence under house arrest.
The International Paralympic Committee said, under its rules, "the sentence means Pistorius is ineligible to compete for the entire five years regardless of where it is served."

That would rule the 27-year-old Pistorius out of the 2016 Paralympics in Rio de Janeiro.

In 2012, Pistorius became the first double-amputee sprinter to compete at both the Olympics and Paralympics in London.

The International Olympic Committee called the case "a human tragedy for the family of Reeva Steenkamp and also for Oscar Pistorius," but declined to comment on his eligibility to compete.

"We hope very much that time will bring comfort to all those concerned but at this stage we have no further comment to make," IOC spokesman Mark Adams said.

The International Association of Athletics Federations said: "The IAAF has no comment to make about Oscar Pistorius."

Friday, October 17, 2014

Women, old people, disabled people still under-represented on TV, says British diversity study

From The Guardian in the UK:

Women and older people are still starkly under-represented on television according to a report which revealed that disabled contributors are barely seen on some of the UK’s biggest-rating shows.

The study of small screen diversity said television was far younger and more male than the population at large, with large gaps in the representation of disabled, ethnic minorities, and lesbian, gay and bisexual people.

Broadcasters have been united in their public determination to improve diversity both on screen and behind the scenes but the report by the Creative Diversity Network highlighted how far they still had to go.

Its analysis of some of the most popular programmes on BBC1, Channel 4, ITV and Sky1 said just 15% of women featured were aged 56 or over, half the actual make-up (30%) of that demographic in the UK.

Men outnumbered women by a ratio of almost 3:2, with women more likely to be aged between 20 and 39 than their male counterparts.

It said older people were “considerably under-represented” with over-55s accounting for just 8% of entertainment presenters and 12% of lead roles in drama.

Ethnic minorities were relatively well-represented but tended to be clustered around certain types of shows, including ITV’s The X Factor and BBC1’s The Voice.

Lesbian, gay or bisexual people comprised 1% of the overall TV population, said the report, against a nationally representative figure of 1.5%.

Miriam O’Reilly, the former Countryfile presenter who won a landmark age discrimination case against the BBC in 2011 and is deputy chair of the Labour party’s commission on older women, said: “By not doing more broadcasters are making it possible for discrimination to thrive.

“Since television has the power to shape prejudice they really – particularly the BBC as state broadcaster – should take a long hard look at the implications for our society.”

The Creative Diversity Network, which is backed by all of the UK’s main broadcasters, looked at the five most popular programmes in drama, entertainment and factual between October last year and April this year, with a maximum of six editions of each show.

The survey, completed last month, was part of plans to come up with a long-term tool for measuring diversity across all broadcasters and follows criticism by actor and comedian Lenny Henry of the “appalling” percentage of black and Asian people in the creative industries.

BBC1 scored best, albeit marginally, with its representation of women and also over 55s, accounting for 22.5% of all its on-screen contributors, double Sky1’s 11.2%.

ITV had the most minority ethnic faces with 16.5% (against 12.9% recorded in the 2011 census), ahead of BBC1’s 12.2%, and also the most disabled contributors, with 3.5% ahead of Channel 4, which came bottom in the disabled category with just 1.4%.

The broadcaster, which was home to the Sochi winter Paralympics as well as the Paralympics in London 2012, has previously said it has gone “further than any other broadcaster in putting disabled presenters at the heart of what we do”.

A Channel 4 spokesman said: “As the CDN has made clear, the small sample within this pilot study is not representative – it covers just 2% of the Channel 4 schedule – and it serves to highlight how valuable the CDN diversity monitoring tool will be in measuring and increasing representation across all programming going forwards.”

BBC director general Tony Hall has made improving diversity a key tenet of his time at the BBC. “The BBC gets much right on diversity, but the simple fact is that we need to do more,” he said in June.

“I am not content for the BBC to be merely good or above average. I want a new talent-led approach that will help set the pace in the media industry.”

A BBC spokesman said: “Clearly the huge range and variety of our programming can’t ever be captured in a sample of 15 programmes, and we’re working with the industry to develop a more consistent and rigorous monitoring tool.

“However, like other broadcasters, we recognise that more needs to be done to ensure all audiences are reflected on screen which is why we’re taking action to increase ethnic minority and disability representation and will continue to do our very best to improve in these areas.”

Responding to criticism by Henry and others, culture minister Ed Vaizey has called the lack of black and ethnic minority faces on UK television as “frankly weird”. BSkyB pledged earlier this year to take 20% of talent from black, Asian or other minority backgrounds.

Sky entertainment director Stuart Murphy said: “The results of the report highlight once again the need for us to tackle the lack of diversity on our screens.

“Sky has publicly committed to ambitious targets to make this happen. TV will be much better for all customers when it starts to reflect the Britain and Ireland in which we live.”

An ITV spokesman said: “As chair of the CDN we are committed to working with the other broadcaster, and non broadcaster members, to jointly take steps towards real shared action – which includes monitoring.
“Diversity, in its broadest sense, is important to us at ITV and we are committed to maximising the growth of diverse talent as well as increasing diversity on screen.

“We are also working on a social partnership with producers, as part of the commissioning process, that will challenge us all to think collectively about the impact we have on the people, communities and environment in which we operate, and represent within our programmes.”

Monday, October 13, 2014

New York Times 'Boys in Bunkhouse' series wins disability reporting award

From the National Center on Disability and Journalism at Arizona State University:

A New York Times story about a group of men with intellectual disabilities who worked in servitude for decades has won top honors in the 2014 Katherine Schneider Journalism Award for Excellence in Reporting on Disability.

The second-place award went to the Anchorage Daily News. Judges also awarded an honorable mention to the Kansas City Star as well as to a student-created deaf and hearing newscast at Arizona State University.

The contest, the only one devoted exclusively to disability reporting, is administered by the National Center on Disability and Journalism at the Walter Cronkite School of Journalism and Mass Communication at ASU. It was created in 2013 under a grant from Schneider, a retired clinical psychologist who has been blind since birth and who also supports the national Schneider Family Book Awards.

First place went to Dan Barry, Kassie Bracken and Nicole Bengiveno of The New York Times for “The ‘Boys’ in the Bunkhouse,” which describes in text, photos and video the lives of men who for 30 years worked in an Iowa turkey processing plant for almost no pay. The story raised questions about the federal law that permitted the men to be underpaid for doing the same work as their non-disabled colleagues, explained how regulators effectively sanctioned the exploitation and detailed the squalid living conditions and mistreatment the men endured.

The New York Times team spent most of 2013 documenting the men’s experience, which was first revealed in stories in The Des Moines Register in 2009. Barry wrote and reported the winning story, utilizing court records and company documents and conducting the first interviews with the men. Bracken produced a half-hour documentary that accompanied the project, and Bengiveno was the lead photographer.
Other New York Times’ staff members who contributed to the project were Chuck Strum, deputy national editor; Meaghan Looram, deputy picture editor; John Woo, video editor; and Justine Simons, senior producer.

Barry will accept the award and a $5,000 cash prize on behalf of the Times’ team Nov. 3 at the Cronkite School, where he also will deliver a talk on his work to students, faculty and the public. The talk, part of the school’s Must See Mondays lecture series, will be held at 7 p.m. in the school’s First Amendment forum. It is free of charge and open to the public, and a sign language interpreter will be on hand.

Contest judges awarded second place to Kyle Hopkins and Marc Lester of the Anchorage Daily News for “State of Intoxication – Fetal Alcohol Spectrum Disorders.” The pair will share a $1,500 prize for the series, which provides an intimate portrait of children with Fetal Alcohol Spectrum Disorders. As common as autism, the disability is widely misunderstood and underdiagnosed in the U.S.

Eric Adler of The Kansas City Star was awarded honorable mention and $500 for “Denise’s Decision,” which chronicles the legal, medical and emotional ordeal of placing a loved one into long-term nursing care.
Finally, judges awarded special recognition and a $500 award to Peyton Gallovich and Melissa Yingst Huber of ASU for their startup enterprise, a television show that delivers the news for both deaf and hearing audiences. It is the first newscast to employ sign language, voices and captions to relay the news, allowing families to watch the news together. The bi-weekly show is available online and on stations in the Phoenix area.

Judges for the contest said they were impressed by the breadth and depth of the reporting on a range of disability issues but singled out Barry’s work for both the quality of the storytelling and the critical issues it unveiled.

Judge Jennifer LaFleur, senior editor for data journalism at the Center for Investigative Reporting, called the winning entry “a beautiful narrative that tells the horrific story of how the rights of more than two dozen disabled men were denied and how the system designed to protected them failed. ‘The ‘Boys’ in the Bunkhouse’ is an important contribution to disability journalism.”

Barry said, "We are humbled and honored by having been chosen as recipients of the 2014 Katherine Schneider Journalism Award for Excellence in Reporting on Disability. From the start we knew that the voices of the men of Atalissa needed to be heard, and we are just so fortunate that the men — and their many advocates — gave us their time, and their stories. Thank you so much."

Judges reviewed 89 entries from journalists around the world. In addition to LaFleur, the judges were Jerry Ceppos, dean of the Manship School of Mass Communication at Louisiana State University and former vice president for news at Knight Ridder; Tony Coelho, former U.S. congressman and primary author and sponsor of the Americans with Disabilities Act;. Jennifer Longdon, a disability rights advocate and former chair of the Phoenix Mayor’s Commission on Disability Issues; and Tim McGuire, the Frank Russell Chair for the Business of Journalism at the Cronkite School and former editor and senior vice president of the Minneapolis Star Tribune newspaper.

In 2013, the inaugural Schneider award went to Ryan Gabrielson of California Watch, part of The Center for Investigative Reporting, for a series exposing the routine failure on the part of police to protect the developmentally disabled at California care institutions.

The contest seeks to recognize journalism that sets a new and higher standard for reporting on disability issues and people with disabilities, said Kristin Gilger, associate dean of the Cronkite School and director of the NCDJ. “This year’s winners did that far beyond our expectations, and they did it by telling compelling human stories and by holding power accountable,” she said.

Schneider pointed out that millions of people have some form of disability, yet they are frequently under-covered by the media or they are depicted in stereotypical ways. In establishing the contest, “I wanted to help highlight good stories, and I chose to work with the NCDJ and the Cronkite School because of their commitment to fair and accurate journalism that includes diversity,” she said.

Sunday, October 12, 2014

Russia-USA Media Enabled Musketeers project teaches people with disabilities how to use journalism to talk about their lives

From Russia behind the headlines:

Even as political relations between the U.S. and Russia reach lows not seen since the Cold War, joint social and cultural projects continue. 
The Media Enabled Musketeers, part of the U.S.-Russia Social Expertise Exchange, presented their first festival of short films in Moscow on Sept. 19. The goal of Media Enabled Musketeers is to train people with disabilities to tell stories about their lives through short documentaries. The project unites professional journalists and film directors with people with disabilities. 
In addition to learning journalism skills and making films, the partners in the project, which include the Journalism Advancement and Support Center in Moscow and the Downtown Community Television Center in Manhattan, conduct community training seminars on disability sensitivity. 
American journalist and documentary filmmaker Jon Alpert, who is also the co-founder of the Downtown Community Television Center, told RBTH that the idea for the project came in summer 2013 when he was taking part in a Skype conference with Olga Kravtsova from the Journalism Advancement and Support Center in Moscow and Karina Chupina, an expert trainer-consultant of the Council of Europe on youth participation and disability issues. 
What Russians think about people with disabilities What Russians think about people with disabilities The initiative received funding from the U.S.-Russia Peer-to-Peer Dialogue Program, which is funded by the State Department, the Eurasia Foundation, the U.S. Embassy in Moscow, Sony and private donors, including one of Russia’s best-known hockey stars, Vyshevslav Fetisov, who helped purchase cameras. 
As Alpert, Kravtsova and Chupina continued to develop the idea, they began looking for participants. In addition to people with disabilities who would be interested in taking part, the group needed professionals on the ground who would help make the films. 
“We asked here in Russia, who would like to work with us?” said Alpert. “We got no reaction in Moscow, but TV channels in Sergiev Posad (a Moscow Region town about 40 miles outside the city) and Krasnoyarsk (in Siberia, 4,000 miles east of Moscow) became very excited about the project,” Alpert said. 
In January 2014, Alpert took part in two training sessions for local journalists in those cities. At the presentation of the films on Sept. 19, Alpert further explained his interest in developing this cross-cultural filmmaking project. 
“We like this project, because every country in the world can do a better job fighting for peace and friendship. Both Russia and my country can do a better job for providing equal opportunities for its citizens. Media can be important part of building friendship, peace and opportunity.” 
The project eventually included more than 60 participants from both Russia and the U.S. The American participants traveled to Moscow for the Sept. 19 event, and the Russian group will visit the U.S. for the American debut in October. 

Jonathan Novick, who made a short documentary called “Don’t Look Down on Me” about his life in New York with dwarfism, participated in the program from the American side and presented the American participants in the project at the event on Sept. 19. Don't Look Down on Me.
“This entire experience has been nothing less than amazing. First of all, coming together to make films that share the perspective of people who might be not heard and focusing on issues we might not know about – it was extremely gratifying. But more amazing is to come here, all the way to Moscow and watch films on a big screen with all of you.” 
 To make his film, Novick film used a hidden camera in a shirt button to display the harassment, condescension, and ignorance he faces on a daily basis. He posted the film on YouTube on Aug. 7, and the eye-opening six-minute short has already been viewed more than 2.5 million times. 
The 13 films shown in the festival were divided into several categories: little people, people with autism, visually impaired and deaf people, sports and disability in mid-life. The creators of the films addressed different issues in their everyday lives, such as choosing a career, taking care of a sick baby and falling in love. 
After the screenings, American and Russian participants were able to meet one another for the first time – during the course of the project, they communicated with each other online. Mariam Magomedova from Moscow spoke for the Russian group: “I’ve heard about this program from Jon (Alpert), who I knew for long time through the American Cultural Center [in Moscow]. We went to a workshop in Sergiev Posad, and he showed us how to work with the camera. Karina Chupina hold a workshop on understanding disability imagery in the media and common mistakes that journalists or people working with disabilities make,” said Mariam, who made a film about living with cerebral palsy. 
“We spoke about terminology for disabled people – like what is correct and what is not. My tutor was from the Sergiev Posad local television station, and with her I was able to feel like a real film director, although she did the montage.” 
On Oct. 17 this unique collection of films will be shown at HBO’s theater in New York, and later some of them will be broadcasted on local public television stations. Alpert is optimistic about the future of the project, although at the moment he is not sure if it will continue next year. 
“I didn’t expect that the films would be so good. I think everybody worked hard and over-fulfilled any expectations. I’m really happy. If everybody will be equally helpful, and we receive the same basic funding, I’m sure we will do it again.” 
Regardless of what happens in the future, Alpert said that the initiative has already made a lasting impact in the lives of the participants and the partner organizations. 
“What is really cool about this,” Alpert said, “is that now the local TV station in Sergiev Posad is doing an investigative report as to why there is no single accessible room for disabled people in the main hotel. They do it on their own now!”

Saturday, October 11, 2014

'Raw Beauty Project' in NY City empowers disabled women

From The Today Show:

When she was 19, Wendy Crawford’s life as a model changed forever, after a car accident left her a quadriplegic. Thirty years later, she’s not only posing in front of the camera, but empowering other women with disabilities to discover their own Raw Beauty.

The co-creator of The Raw Beauty Project NYC told that after her accident — she was hit by a drunk driver — she initially remained optimistic that she could have a future in modeling with a disability, but was disappointed that the industry wasn’t as receptive to the idea.

Wendy Crawford is one of the people behind The Raw Beauty Project NYC, a photo exhibition designed to empower women with disabilities. 
Crawford, now 49, went on to found the mobileWOMEN advocacy group for women in wheelchairs in 2002, and in 2006 she helped created “Uncensored Life: Raw Beauty,” a Miami exhibit featuring photos of 20 disabled women that aimed to create new perceptions, shatter stereotypes and raise awareness for women with physical challenges.

“[Models] become empowered by it, and realize there are so many other things they can do,” Crawford said.

This year, partnered with the Christopher & Dana Reeve Foundation to develop The Raw Beauty Project, a spinoff that features 20 women with disabilities to emphasize their "beauty, empowerment and sensuality," according to the project's website. Showcased last month at ACA Galleries in Manhattan, photographs from the series have been sold to benefit the Reeve Foundation, which raises money and awareness for people living with spinal cord injuries and paralysis.

Dixon, the lead photographer for The Raw Beauty Project, told she’s inspired by the models who have participated: "These women are role models, visionaries, and it's just an honor to be part of shattering the traditional and cultural definition of what beauty looks like.”

Solman, the model outreach coordinator and co-chair of The Raw Beauty Project, said the models’ stories are just as powerful and transcendent as the photos. “Since it is our belief that everyone has obstacles and challenges in life, because the models’ [disabilities] in life are visually obvious, the audience sees powerful examples of women overcoming obstacles, so they can be inspired in their own lives,” she added.
Some of the models to participate in The Raw Beauty Project shared their thoughts about participating in The Raw Beauty Project with

Deborah Mellen, a paraplegic, said the project presented an opportunity for her to realize how she felt about herself. “I had become used to feeling that most people who meet me do not see my joy because they cannot imagine someone in a wheelchair feeling this way,” she said via email. She calls this photo "perfect" and says, "I am full of joy. I came away happy I pushed myself and proud to be part of an exhilarating group of women.”

Danielle Sheypuk, who lives with spinal muscular atrophy, said she reveled in illustrating the “raw” in the Raw Beauty Project. “I was thrilled to pose my body in beautiful, sensuous angles in front of the camera to support the project and its significant message: normalizing being beautiful and glamorous with disability,” she said.

The experience was a breath of fresh air, says Monique Stamps, who has a spinal cord injury: “This experience has given me more strength to embrace who I am and my disability, move forward boldly in life and continue to always uplift others.”

Christy Cruz, who has cerebral palsy, said she was happy to “showcase elegance from a different perspective,” one you won’t often find in fashion magazines: “I was thrilled to see women with various physical disabilities unite with one another to bring forth a renewed attitude about the misconceptions of our lives.”

Maggie Redden became a paraplegic after a bout with polio, and found it difficult to break into the modeling business. She praised The Raw Beauty Project, because “elegance, strength, and beauty are what truly make each model beautiful, and that’s what each photo captures.”

Aimee Hofmann, a paraplegic, said she wanted to work on the project so she could be an inspiration for all women, not just those with disabilities. “Sometimes having a physical disability can make one feel physically ‘locked,’" she said. "However, the Raw Beauty Project made me realize, I can unleash that beautiful, confident woman once again.”
Blogger and advocate Emily Ladau (pictured) didn’t want her Larsen Syndrome, a bone disorder, to make her self-conscious during her shoot. “Participating in the photo shoot and being part of the gallery proved to be a transformative kind of activism for me — a way to act on my mission to change society’s perceptions of disability,” she told TODAY.

Cheryl Price, who’s lived with a spinal cord injury since birth, said she grew up not wanting to stand out from the crowd, but now views her disability as an opportunity to create change: "Yes, I am standing out, and it feels beautiful.”

Crawford hopes the project leads to improved access, education and outreach to women with disabilities, while empowering them to feel sensual, ambitious, creative and confident.

“These women, the reason they’ve been able to overcome their obstacles is because they believe in themselves and they love themselves,” Crawford said. “I was stuck for a while, and I didn’t feel that way, originally. Even though on the outside, I appeared OK, on the inside, I didn’t accept myself. So, that was a new journey, and once I could do that, then I feel like doors opened for me, and the whole universe opened.”

Thursday, October 9, 2014

'Baby-Sitters Club' author Ann M. Martin's new book takes on autism

From CNN:

It's been almost 15 years since "The Baby-Sitters Club" held its last meeting, when author Ann M. Martin decided it was time to move beyond Kristy, Claudia, Mary Anne, Jessi and their friends from the popular book series.

But Martin has continued to write about adolescent experiences, from first loves to dyslexia and bullying. Her latest book, "Rain Reign," out Tuesday, is told from the perspective of a fifth-grader with high-functioning autism.

Rose Howard is obsessed with homonyms, prime numbers and following the rules -- something her teachers, classmates and single father don't understand. She feels most at ease around her dog, Rain, but everything changes when a superstorm hits their small town and Rain disappears.

"Rain Reign" isn't the first time Martin has included autism in one of her books, but it was a new experience for her to write using the first-person voice of a child with autism.

Below is a transcript of our interview with Martin, edited for brevity and clarity.

CNN: Where did you get the idea for "Rain Reign"?

Ann M. Martin: I would say that it's been a long time in the making. The character of Rose has been percolating for a while, but the very beginnings of this story go back decades to the 1970s when I was in high school and college. I was fascinated with autism, and I began working the summers at a school in Princeton, New Jersey, for kids with autism. The interest has never left me. I minored in special education when I was in college. I wrote twice before about kids with autism but never from the point of view of the person with autism. Rose was the first one, and I just could almost hear her voice in my head, and her obsessions and idiosyncrasies were becoming clearer and clearer to me.

My editors Jean Feiwel and Liz Szabla and I had been talking about my writing another dog story. We had talked about a superstorm in some way because here in Ulster County (New York), where I live, we were hit incredibly hard by Hurricane Irene. It was very devastating in this area. All of these things came together at the same time -- a dog story, Rose and the storm -- and eventually the pieces came together.

CNN: How did you develop Rose's voice?

Martin: I thought it was going to be difficult. When I wrote "A Dog's Life," which was the first dog story I wrote, I had to experiment for a long time. It was told from the point of view of Squirrel, a dog, and I had to do quite a bit of experimenting with her voice before I settled on it. Rose's voice seemed to come to me more naturally. I think already knowing what her obsessions were, not only homonyms but prime numbers and rules, helped because her interests crept into her voice and helped shape it. So it wasn't as challenging as I had thought it was going to be.

CNN: Rose details her favorite homonyms throughout the book. What is your favorite homonym?

Martin: I have a lot, because I am just almost as interested in homonyms as Rose. The more different the spelling is for a pair of homonyms, the more interesting it is to me. One of my favorites that Rose discovers and mentions towards the end of the book is "soared" and "sword."

CNN: What did you enjoy most of working on "The Baby-Sitters Club" series?

Martin: Once I found a rhythm and developed the characters, I liked not having to say goodbye to them at the end of each book. On the other hand, by the time I wanted to end the series, I really felt it was time. I had told everybody's stories as well as I wanted to, and it was finally time to say goodbye and let them graduate from eighth grade. I also wanted to spread my writing wings and try different things, write in different time periods. I think we all felt it was time to end the series. But I love hearing from adults who read "The Baby-Sitters Club" books as children.

CNN: You worked with other writers on "The Baby-Sitters Club" series after the demand became too great and sent them outlines for future BSC books. What was that process like?

Martin: I really enjoyed it. I had been an editor before I became a full-time writer, so this was like putting my editorial hat back on. I am a huge outliner. I outline everything. The authors that my editors, and I chose to write the other books in the series were people who either I had worked with or the editors had worked with before and we felt that they could continue the voice of the characters. We kept the number of other writers very small to try to maintain this consistent voice for the series, and each of the authors had read all of the books in the series up to the point from which they would be writing so they would have the background. I trusted the writers we had chosen, and I felt that we worked really well together. I almost didn't have a choice, because there is no way I could have written all those books myself! I felt that this was the best of both worlds because I couldn't do it myself, but this was the schedule that Scholastic wanted, so it became what I thought was a very nice group effort.

CNN: What do you think of the status of middle school fiction right now and where it's going?

Martin: It is different from where it was when I first started writing. There is more fantasy, more sci-fi adventure and vampires, and I think it's interesting. I have a feeling in a few years, things will take a turn. The most important thing is, as long as kids are interested and turn into readers, especially avid readers, I think that's fabulous. Most kids become eclectic readers, which is great, and that's my hope for any reader, to find things that they love and hopefully those will lead them to other things.

CNN: You've tackled a lot of different issues in your books. What are some other things you'd like to cover in the future?

Martin: I would like to think maybe about writing fantasy in the near future. I've touched on it when I write the "Doll People" books with Laura Godwin, but she is the one with more of a handle on writing fantasy. So to write fantasy, even a light fantasy, would be a real challenge. I was thinking more in that direction than touching on another issue, which is not to say I won't do it; I just haven't been thinking about it.

When I was growing up, some of my favorite books were light fantasy, like the "Doctor Dolittle" books, "Charlie and the Chocolate Factory," "James and the Giant Peach" and "Mr. Popper's Penguins," but for whatever reason when I began writing, the stories were much more realistic. So, I think it would be fun to tackle fantasy on my own.

Raleigh, N.C. science museum launches app for visitors with disabilities


The N.C. Museum of Natural Sciences in Raleigh has launched the first-of-its-kind app for visitors with a disability.

NC NatSci is available now to be downloaded for free from the Apple App Store. Liani Yirka, the museum's curator of special populations, and SAS employees developed the app, which aims to make the museum more accessible to all, a press release says. It's being called the first of its kind for museums.

“This app allows visitors with visual impairments the ability to mentally map the Museum and know what exhibits exist so they can decide what they want to spend their time doing here and better plan their visit,” Yirka said in a press release. “But the really rewarding aspect will be the freedom this app will allow visitors with disabilities when visiting the museum.”

I downloaded the app on my phone and cruised around. It has basic information like the hours and directors. There's a list of exhibits and maps so you can plan your time. It lets visitors know where there are interactive exhibits so they can take advantage of all that the museum has to offer. There are graphics with text-based, audio or rich multimedia content specific to each exhibit space, the release says.

While the goal here is to help visitors with disabilities, the app is great for anybody, including school groups, families and others trying to map out their visit to the museum. If you don't have an Apple iOS device, the museum has 15 new iPod Touch devices that are available for use upon request.

Also, congratulations to Yirka and the museum. It recently won the Ken Franklin Citizen Involvement Award, which was announced at the Raleigh Mayor’s Committee for Persons with Disabilities Annual Awards Banquet last week. The committee recognizes employers, businesses, agencies and individuals in Raleigh who work to make the city accessible to all.

Sunday, October 5, 2014

Meet the first Peruvian with Down syndrome to graduate college

From Peru This Week:

Bryan Russell Mujica, 22, finished his fifth year in journalism at USIL.

His first achievement was traveling alone by bus. He felt, then at age 17, independent. That day, led by his feet, he began walking in Miraflores and ended up lost in Chorrillos. He was never afraid. Moreover, Bryan says he almost never feels fear despite having Down syndrome which has caused him to be almost inseparable from his parents.

“A gentleman gave me a sol and another walked me to the bus. I was happy to tell my mom, who was frightened,” he says laughing.

His second achievement occurred Wednesday night when he heard his name called out amidst applause.
“I´m graduating? Me? I couldn´t believe it,” he says with a tender disbelief.

And it’s no wonder. Bryan Russell Mujica is 22 years old and the last five were spent trying to prove that he is no different. He enrolled at the Universidad San Ignacio de Loyola convinced to become a journalist and came out convincing others. “It was my own decision, I love writing, I want people to be aware of me, I want them to read me,” he says.

So bold and persistent is Bryan, tells his mother Gladys. So much so that when some called her crazy for believing her son would graduate from university, she was not offended.

Twenty-two years ago a doctor had told her that Bryan would not be able to even walk. “I see him now, with his robe, his medals, applauded by all and I feel nothing but happiness,” she says.

Michael Russell, his father, who is British, could not stop smiling when he learned that Bryan had inherited his passion for reading. “He also tells jokes like me,” he tries to say in Spanish.

While his parents continue to celebrate his success, Bryan is already thinking where he will go next from here.

The first thing that comes to his mind is to start work and get a Masters degree.

“Marry? No, I’m too young, maybe when I´m 50 I´ll think about having children,” he says as he smiles again.

Stephen Hawking biopic, 'Theory of Everything,' opens in USA November 7


A new trailer for the upcoming Stephen Hawking biopic "The Theory of Everything" is out, and it takes viewers even deeper into the personal life of the famed astrophysicist.

The 2.5-minute trailer, which came out Oct. 1, is the second Focus Features has released to tout the film, which hits theaters in the United States on Nov. 7 — interestingly, the same day as the highly anticipated Christopher Nolan sci-fi epic "Interstellar."

The first trailer made it clear that "The Theory of Everything" will be a tear-jerker centering on the relationship between Stephen Hawking and his first wife, Jane. The new one reinforces that notion, implying that Jane's love helped Hawking overcome huge obstacles to become perhaps the most famous scientist since Albert Einstein.

"I love him, and he loves me," Jane, played by Felicity Jones, says in the new trailer. "We're going to fight this illness together."
"This illness" is ALS (amyotrophic lateral sclerosis), also known as Lou Gehrig's disease. Doctors diagnosed Hawking with ALS in early 1963, giving him just two years to live. Hawking was 21 at the time, and he had just begun a relationship with Jane, whom he met at Cambridge University in England.

Hawking, now 72, defied those long odds. Over the years, the disease robbed him of his mobility and his speech — he is a wheelchair user and uses a computerized system to communicate now — but he still managed to conduct research into black holes, the Big Bang and other topics, as well as write a number of best-selling books.

Stephen Hawking — played in the upcoming film by Eddie Redmayne — and Jane married in 1965 and had three children together. The couple divorced in 1995. "The Theory of Everything" is based on Jane Hawking's 2007 memoir, "Travelling to Infinity: My Life with Stephen."

Friday, October 3, 2014

Google Glass now closed-captions conversations

From Gizmag:

Google Glass hasn't exactly set the world on fire – or, for that matter, even left beta status. But that doesn't mean there aren't still some cool potential uses for the headset. Today Glass has two big new apps: one that can turn it into a life-changing tool for the hearing-impaired, and another that, erm, helps movie theaters sell tickets.

Captioning on Glass (CoG) is a real-time closed-captioning app for Google Glass. If you're deaf or hard of hearing, you'll see the words that a partner is speaking to you on your Glass display – almost instantly.

The only catch is that the speaker needs to be talking into a paired Android smartphone with a companion app installed. Google Glass has its own built-in microphone and voice recognition software, but it's much better at recognizing the wearer's voice than it is background voices. The CoG service uses the paired phone's microphone, held near the mouth of the person that's speaking, to deliver much more accurate transcription.

If the Captioning app transcribes something wrong, the speaker can easily correct it from within the phone app (either from a list of suggestions or entered manually). And if the Glass wearer is also visually-impaired, he or she can adjust the text size.

Like most other Glass functions, the process is triggered with an "OK Glass" command (in this case, followed by "... recognize this!").

Preview for Glass offers new functionality as well, but it's of a more commercial nature. After installing the app, you simply wear Glass to a movie theater, look at a coming attraction poster and say "OK Glass, recognize this!" (yep, the same command as CoG). The movie's trailer will then play on your head-mounted display.

If you aren't yet convinced of Google Glass' merits, then Preview won't likely change that. After all, it isn't exactly hard to whip out your smartphone and open the YouTube app while waiting for a flick to start. But if you're already a happy Glass Explorer, then perhaps it could save you the trouble of reaching into your pocket the next time you pass that new Mockingjay poster.

Both of the new "Recognize this!" apps are available now from the source links. And you can learn more about Captioning on Glass in the video below.

Wednesday, October 1, 2014

No longer left behind--emergency preparedness planning in NY City will include people with disabilities due to landmark legal victory

From Center for Independence of the Disabled, NY(CIDNY). Pictured is an inaccessible entrance to an evacuation shelter in NY City.

Time after time, New Yorkers with disabilities affected by disasters were locked out of shelters, couldn’t get out of high rises to get food, water, services or medicine, couldn’t use the transportation that everyone else used to evacuate, and couldn’t even get life-saving information. Now they can look forward important changes as a result of a landmark victory in CIDNY’s civil rights lawsuit.

Federal Judge Jesse Furman agreed with plaintiffs including CIDNY, BCID, Tania Morales and Gregory Bell, that the City had not planned adequately for the needs of people with disabilities during disasters and emergencies, violating federal civil rights law.  The judge instructed the plaintiffs from the disability community, represented by Disability Rights Advocates, and the City to negotiate remedies. 

On September 30, 2014, we delivered agreements to the Judge. Once these agreements become part of the City’s plan, New York City will be a national leader in emergency preparedness. The next step is creating and implementing a fully integrated plan of action in emergencies and disasters that include people with disabilities. 

Susan Dooha, CIDNY’s Executive Director, said, “Nearly 25 years after passage of the Americans with Disabilities Act, we have achieved a landmark decision to end exclusion of people with disabilities from the planning for emergencies and disasters.  Finally, New Yorkers with disabilities will be able to evacuate to accessible shelters. They will get timely, appropriate information in ways they can use. No one will be left on the side of the road because of a lack of accessible transportation.  We look forward to working with the Mayor and the City’s agencies to take these agreements from the page to the real world.”
After lengthy negotiations, the disability community and the City have agreed on memos of understanding that will, in part, make sure that by 2017 the City will:

·         create a minimum of 60 accessible shelters throughout the five boroughs can serve approximately 120,000 people with disabilities;
·         create a canvassing operation that will go door-to-door to find people who need help getting resources like food, water, electricity and care;
·         develop plans for effective accessible transportation; and
·         create a task force to create a plan for high rise evacuation and power outages. 

At the same time, the City will create a Disability Community Advisory Panel that includes members of the disability community and will be consulted by the City in developing emergency plans. The City will also hire a top-level Disability and Access and Functional Needs Coordinator who will be the lead employee responsible for overseeing that the City’s plans meet the needs of people with disabilities and comply with state and federal law. If you would like more information or would like to be involved, contact Susan Dooha, or call 212-674-2300.