Melissa Earll (pictured) owns stacks of classic comic books, baseball cards that include a young Hank Aaron and Whitey Ford and other collectibles she wants to sell.
But she can't do so on eBay, she says. According to Earll, the popular auction site can't confirm her as a seller because she's deaf."eBay keeps me from taking advantage of opportunities that other people have and it's because I couldn't hear," Earll, of Nevada, Missouri, told CNN affiliate WDAF-TV. "Somebody has to have the courage to stand up and say 'this is not right.'"At issue, according to Earll, is the way the auction site verifies sellers. eBay says it offered Earll alternative ways of verifying her identity. But the dispute casts a light on a bigger question that some experts say may need to go all the way to the Supreme Court: Just how responsive must the Internet be to the Americans With Disabilities Act?The Internet has long been seen as an equalizer, granting everyone the same access to information regardless of cultural background or economic status. But for some users with disabilities, it's not so simple."The ADA was signed in 1990. The Internet didn't really start going until the 1990s," said William D. Goren, a Decatur, Georgia, attorney who specializes in cases involving the federal law. "This is a topic we're going to have to be watching. This is not going away."In Earll's case, she says she can't use eBay's verification system, which requires sellers to retrieve and submit a password from a telephone call. She can't hear the password and says eBay doesn't use voice-to-text or other technologies deaf people often rely upon."They said, can your mom or dad answer the phone for you," said Earll, who lip-reads and speaks with the assistance of a hearing aid. "And I said, I'm a 47-year-old adult woman. No. I don't live at home. No."A federal judge didn't agree with her argument, though.
U.S. District Judge Edward Davila dismissed her complaint after finding it lacked enough facts. Specifically, he said Earll didn't prove that she tried to register as a seller after talking to eBay about a possible solution."eBay is pleased with the court's decision to dismiss the case," company spokeswoman Kari Ramirez said in a written statement. "eBay strives to provide all users with the best customer experiences possible, including those with special access needs. eBay will continue to stand ready to assist those who are deaf or hard of hearing become eBay sellers."Earll is appealing that ruling.Little legal agreementeBay is the most high-profile website to be involved in a disabilities discrimination case since Netflix, which last year agreed to caption all of its online movies and other shows by 2014.The move, which the National Association for the Deaf called "a model for the streaming video industry," came after Netlix was hit with a 2010 class-action suit because not all of its films were subtitled. A federal judge in Massachusetts ruled in the plaintiffs' favor, saying any new laws regarding the Internet should "complement, not supplant" the Americans With Disabilities Act."The Disability Rights Education & Defense Fund," which handled the case, "hopes that this is the beginning of opening the Internet for deaf and hard-of-hearing individuals in streamed entertainment, education, government benefits, and more," the group said at the time.Arguments for both sides in those and other cases point out something of a problem: There seems to be no agreement on how disability issues on the Web should be handled.Goren, the disability law attorney, said judges have ruled both ways in those cases, and that even those who agreed cited different laws in doing so.Some have stuck close to the original wording of the ADA, which requires that places of business be physically accessible to people with disabilities. Websites that represent brick-and-mortar stores need to comply, courts have ruled, while Web-only businesses do not.Other courts have opined that ADA regulations should obviously be extended to Web companies, since the widespread popularity of Web commerce didn't exist when the law was written. It all makes for a confusing jumble of opinions that legal experts say needs to be clarified.
Congress hasn't been much help, either. Even when they made some changes to the original ADA language in 2008, they failed to address online concerns.To the Supreme Court?That, Goren says, means the Supreme Court will ultimately need to settle the issue once and for all."This is going to go all the way to the top," he said. "There are so many different approaches. You're going to see the courts split. Unless Congress steps in and talks about how the ADA applies to the Internet, the court's going to have to figure it out."Eric Goldman, a professor of law at Santa Clara University and director of the school's High Tech Law Institute, thinks current law is somewhat more settled. The argument that won the day for eBay -- that the ADA doesn't specifically mention websites and, therefore, doesn't apply to them -- has prevailed except for in "quirky rulings," he says."We might debate the merits of those laws, many of which were written for a different time, but that's for the legislatures to do, not the courts," he said. " As a result, the lawsuits against websites for discriminating against the disabled are not legally meritorious. In this case, the courts bent over backwards -- more than they should have, in my opinion -- to give Ms. Earll a chance to make a valid legal complaint. She couldn't."That said, Goldman thinks websites should voluntarily be doing more."In this case, for example, it seems reasonable that eBay should have a workaround to their authentication system that works for the hearing-impaired," he said. "They may have a workaround -- the materials I've read in this case haven't been clear about that -- but the workaround should be easy enough that Ms. Earll never needed to go to court."Some websites may not have the resources to provide full accommodations for the disabled, but a site like eBay does -- and it should do so," he added.eBay notes that in her complaint, Earll said company agents told her about alternative methods, including submitting proof of identity and SMS text messages, that she and other hearing-impaired people could use to become sellers."eBay offers solutions to help the visually and hearing impaired, individuals with color vision deficiencies, as well as those with limited dexterity access eBay's services," said Ramirez, the eBay spokeswoman. On its website, eBay has a page devoted to accessibility issues, including a profie of Rick Willison, a pastor who became a successful seller despite a degenerative eye disease.For her part, Earll says she's willing to go all the way to the Supreme Court if that's what it takes for her to use the auction site as a seller just as easily as she's used it as a shopper."You know what's funny -- eBay loved me as a buyer," she said. "Oh, sure ... because they made money off of me."
Friday, January 11, 2013
Deaf woman's eBay complaint highlights dispute over Web access for disabled people
From CNN:
Saturday, January 5, 2013
Tool designed for blind students proves useful for others, too
From KQED in California:
Some school districts are turning to a new resource to help struggling readers: digital textbooks designed for blind students. A Silicon Valley publishing company is helping develop this format, with a new injection of cash from the federal government. Special education teachers are embracing the digital books.
Rob Turner is blind, but that’s never stopped him from reading. He can read Braille or he can listen to audiobooks. In college, he listened to tapes of textbooks. "I’d have my roommates come in while I’d be listening to it at double speed with the pitch way up like Donald Duck," he recalls, "and they’d be saying 'how can you understand that?'"
Technology has come a long way since then. Nowadays, Turner uses digital books that allow him to speed up a synthesized reading voice without getting that chipmunk effect. To sighted people, the new digital books look similar to what you’d see on a Kindle. Turner says the key element is their operating system, which is called DAISY. It lets him navigate the books by tapping on the screen in response to audio prompts or by using an electronic Braille machine.
"It allows someone who’s reading an electronic book to have anchor points they can quickly move to," Turner explains, "beginnings of chapters, beginnings of sections, specific pages, that sort of thing."
These days, Turner works for a company called Benetech that makes these books. The Silicon Valley nonprofit began its online library a decade ago. Since then, it’s become clear that the books created for blind readers can actually help lots of kids learn to read, such as nine-year-old Jonas Wagner (pictured).
Jonas can see just fine, but his teachers say he has a learning disability that makes it hard for him to interpret text. But he has no trouble using a school computer to access a digital version of his fourth-grade reading textbook.
"If you want to change your page, you just have to click the numbers," he says, as he unplugs his headphones so visitors can listen in. "Then you click the “speak” button." As he does this, the machine begins to read aloud.
Less than one percent of public school students are legally blind. There are far more students like Jonas; some estimates say as many as 10 percent of kids, who can see, but who struggle to decode printed words.
Tammy Irvine, Jonas's special education teacher, says many of these kids have no trouble understanding concepts once they are able to access them. "All of my students have really high comprehension, and they get it," she says. "They just can’t access the print."
Now, Irvine’s students at Toyon Elementary in San Jose not only have access to books and the ideas within them, they can use this new digital tool to go back and “re-read” their books, worksheets, or tests.
Thanks to a special provision in copyright law, Benetech is not the only nonprofit accredited to create accessible books for the blind and print-disabled. A few similar services use recordings of volunteer readers with real human voices instead of mechanical ones. But using digital voices lets Benetech produce books, worksheets and tests faster than anyone else.
Benetech’s next goal is to convince large textbook publishers to create all of their materials in this accessible digital format. Benetech vice president Betsy Beauman says it's the right time to do it. "Everybody’s switching over their publishing process," Beauman says, "so now is the opportune moment for us to be there saying, hey, you guys can do it right this time. Don’t worry about what you did on paper, let’s do a digital book the right way."
To make that possible, the U.S. Department of Education just granted Benetech $6.5 million a year for the next 10 years.
Jonas Wagner's mom is happy to hear that. Both of Amy Wagner’s sons use the digital books to get their work done. "I was afraid they were going to be held back," she says, "or one of them would be held back, and they’re a set of twins and that would be difficult for them. They have a chance."
The federal money will also help Benetech expand its online library. If qualified students or teachers can’t find the book they need, they just have to ask. The company will digitize any book for free.
Thursday, January 3, 2013
World's first eye-tracking PC accessory to launch in 2013
From Mashable:
Eye-tracking technology has been slowly emerging as a viable technology the last couple of years, and it comes in real handy when you want to know which parts of a Facebook profile people actually look at. One of the leaders in the space, Tobii, is set to bring the tech to consumers in 2013 with a peripheral that works with any Windows 8 PC.
Tobii will show off its eye tracker, called the REX, next week at CES. The REX is a strip that attaches beneath your monitor (desktops and laptops are welcome), and it plugs into a USB port. Once it's in place, the device works with special software called Tobii Gaze to track exactly what you're looking at on the screen, letting you do things as mundane as scrolling sideways or as exciting as blasting asteroids -- all with a glance.
We don't know how much the final product will cost, but there's a clue. The REX is available now to developers, and it costs $995. Tobii says it'll only be making 5,000 of the REX peripherals available for consumer purchase.
Tobii expects to launch the REX in the fall. You can't pre-order them yet, but you can sign up here to receive a "VIP pre-order invitation," which are planned to go out in March.
Tobii is clear that this new technology is intended to work with (not instead of) a mouse and keyboard, and it's not simply an assistive tech for the disabled either. Eye tracking will be a big part of human-machine interaction in the future -- at least as Tobii sees it. We're excited to try it out for ourselves next week.
Taiwan launches e-guide to help disabled people find accessible restaurants in Taipei
From CNA:
TAIPEI- Local disability groups launched an e-book and print handbook Jan. 3 designed to help disabled people find and get to disabled-friendly restaurants in Taipei and New Taipei.
The guide offers information on 55 disabled-friendly restaurants in the two cities, how to get there and recommendations and suggestions by disabled people who have been there, disability groups said at a press conference.
The print and electronic publications are the results of a program jointly launched by disability groups, government agencies and a local university in 2012, in which 10 disabled people were sent out to evaluate facilities for the disabled in restaurants in the two cities and share their findings.
“We hope the program can raise government and public awareness of the need for facilities for the disabled,” said Ma Hai-hsia, president of the League of Welfare Organizations for the Disabled of the Republic of China.
She expressed hope that the program will be extended to cover hotels and hospitals in the future.
A smartphone app called “Love Michelin” that has the same content as the e-book and handbook was also promoted at the press conference.
The award-winning app was launched in October last year and has so far recorded some 5,000 downloads, said Huang Tzu-chen, a communication and technology student at National Chiao Tung University who helped develop the app.
Chang Yen-yi, who is confined to a wheelchair because of muscular dystrophy, said the lack of disabled bathrooms in restaurants in Taiwan remains a big concern for disabled people who wish to eat out.
“We'd like to be able to eat and drink freely without having to worry that there are no disabled bathrooms,” said Chang, who evaluated eight of the restaurants for the program.
He added that he often has to refrain from drinking beverages when eating out and that he hopes more restaurants can provide disabled bathroom facilities and improve their seating space for disabled people.
The online tools and handbook were jointly developed by the league, the Taiwan Foundation for Rare Disorders, National Chiao Tung University, the Ministry of Education Advisory Office and the National Science Council.
The e-book, available only in Chinese, can be downloaded for free at http://www.i-me-i-world.com/enable/.
Sunday, December 30, 2012
Russian adoption ban brings uncertainty, outrage and possible danger to orphans with disabilities there
From The NY Times. Pictured is Russian adoptee Alexander D'Jamoos, now a UT-Austin college student. He spoke to John Hockenberry at "The Takeaway" radio show about how devastating the Putin ban will be on other Russian orphans with disabilities.
MOSCOW — President Vladimir V. Putin on Friday signed into law a ban on adoptions of Russian children by American citizens, apparently blocking the departure from Russia of hundreds of orphans who had already been told that they would soon go home with new parents.Among the children whose lives were caught up in uncertainty by the ban was a 3-year-old girl with H.I.V. Her adoption by a couple from the Rocky Mountain West was approved by a judge on Thanksgiving Day but still required a 30-day waiting period, followed by numerous bureaucratic steps that cannot be completed before the ban will become effective on Tuesday.“I’m really, really stressed out,” said the adoptive mother, who asked not to be identified to protect the privacy of the girl she still expected to bring home.She said she was filled with second thoughts about whether they had done everything they could to assure the adoption. “Why weren’t we on a plane as soon as there was even a mention of the ban?” she said.The adoption ban, which was included in a broader law retaliating against the United States for an effort to punish Russian human rights violators, has opened a deep and emotional schism at the highest levels of the government and more broadly throughout Russian society. It has also dealt a severe blow to the country’s already strained diplomatic relationship with the United States.The Kremlin’s announcement that Mr. Putin had signed the law set off fierce reactions and some immediate second-guessing, even by some of the president’s political allies.Robert Schlegel, a lawmaker from the majority United Russia party, which championed the adoption ban in the lower house of Parliament, posted on Twitter that he had proposed an amendment that would create an exception to the ban for children with disabilities. Critics asked why he had not done so before the measure was approved.A number of commentators, including Vladimir Varfolomeyev, a well-known host on the radio station Ekho Moskvy, compared Mr. Putin to the biblical King Herod, noting that the adoption ban was signed on the same day that the Orthodox Church commemorates the Massacre of the Innocents, when Herod ordered the killing of infants in Bethlehem.There was also sharp reaction in Washington, where some officials seemed to have been holding back in the vain hope that Mr. Putin would veto the ban.In a statement, Senator John McCain, Republican of Arizona, called the ban “shameful and appalling.”“The effects of this legislation are cruel and malicious,” Mr. McCain said, adding, “To punish innocent babies and children over a political disagreement between our governments is a new low, even for Putin’s Russia.”Mr. McCain was a leading supporter of the American law targeting human rights violators in Russia. That law is named for Sergei L. Magnitsky, a Russian lawyer who tried to expose government tax fraud but was arrested and died in prison in 2009 after purportedly being denied proper medical care.In a judicial corollary to the dispute over the Magnitsky bill, a Moscow judge on Friday acquitted the only official to be tried on charges related to Mr. Magnitsky’s death.The official, Dmitry Kratov, the former head of the medical service at Butyrka Prison, where Mr. Magnitsky had been held, had been charged with negligence for refusing repeated requests for treatment of a life-threatening illness.Charges against another doctor were dismissed this year, and in closing arguments on Monday, the prosecutor did an about-face and urged the acquittal of Dr. Kratov, saying there was no evidence that he was responsible for Mr. Magnitsky’s death.That reversal came four days after Mr. Putin, at his annual news conference, told journalists that Mr. Magnitsky had died of a heart attack, and waved off criticism by noting that prisoners die in jails all the time, including in the United States.Dr. Kratov was the only person on a list of 60 Russian officials implicated in the Magnitsky case by the U.S. Helsinki Commission to be brought to trial in Russia.Nikolai Gorokhov, a lawyer representing the Magnitsky family, said that Dr. Kratov had signed documents refusing Mr. Magnitsky’s request to be moved to an infirmary, and that he had been aware of a diagnosis of pancreatitis and gallstones five days before Mr. Magnitsky’s death.The Magnitsky law bars individuals like Dr. Kratov, who have been accused of human rights abuses, from traveling to the United States or from owning property or other assets here.Russian policy makers were vexed in trying to come up with a reciprocal response, in large part because Americans typically do not vacation, own homes or maintain assets in Russia. Wealthy Russians, on the other hand, have been involved in some of the biggest real estate deals in America in recent years, and often travel to the United States.The initial legislative response in Russia focused on sanctions similar to those in the Magnitsky law on American judges and others accused of violating the rights of adopted Russian children in the United States. The law was named for Dmitri Yakovlev, a toddler who died of heatstroke in Virginia in 2008 after his adoptive father left him in a parked car for nine hours. The father was acquitted of manslaughter by a judge who ruled the death an accident.Such cases have generated outrage here, which spilled over in 2010 when a Tennessee woman who was the adoptive mother of a 7-year-old boy sent him alone on a flight back to Russia with a note saying she could no longer handle him.Along with the Yakovlev law, Mr. Putin signed a presidential decree ordering that the government take steps to encourage additional adoptions by Russians, and to improve health care for orphans.Child welfare advocates, however, have mocked the decree as lip service in a country where more than 650,000 children live in foster care or orphanages, of whom about 120,000 are eligible for adoption. Many children in orphanages are sick or disabled, and most are unlikely to ever find permanent homes.Critics of the ban say there are not enough Russians willing to adopt healthy children, let alone those with special needs.Heather Whaley and her husband, Aaron, from Frederick, Md., were willing to do so and have been matched with a 4-year-old girl with several developmental delays who is in an orphanage in Vladivostok in the Russian Far East. They have gone through exhaustive screening, and have been scraping together money to visit the girl, who is named Regina.But now they say they do not know what to expect.Ms. Whaley, 31, a therapist for special-needs children, and her husband, 28, an engineer, said devout Christianity drove them to adopt, along with Ms. Whaley’s happy personal experience when her parents adopted two girls, giving her two new sisters.Regina, according to medical reports, is tiny for her age, and her speech is delayed. Russian families have not offered to take her. “With my training, I firmly believe that I can help her,” Ms. Whaley said.The mother from the American West said she had visited her daughter twice this year, in July and in November. The little girl has blond hair and big blue eyes and is so active that the orphanage director has said, “I think there’s a boy in that little girl.”But because she is H.I.V.-positive and already 3 years old, her chances of being adopted are slim.“I don’t think she is desirable to anybody in Russia at this stage of the game,” said the mother, who still plans to travel to Russia next month. “She would grow up in an orphanage for her entire life and be turned out when she comes of age.”
British Paralympian Dame Tanni Grey-Thompson believes 2012 was the year Paralympics 'came of age'
There were two deeply personal moments. The first came in the opening ceremony, when I was swept across to the middle of the stadium on a zip wire, confronting my fear of heights, only to be told by my daughter that the moment was “quite good”. Another family member told me the “girl in the tennis chair was better”. Thanks.
Still, it did mean that I could sit next to the track less than two metres from the British team when they proudly walked out for the athletes’ parade. The reaction they got from the crowd was everything I could ever have hoped for from 2012.
The second is David Weir’s gold medal in the marathon. I’m probably going to have to keep apologising to David for saying live on radio that he looked bored with one lap to go – relaxed would have been a better word. Either way I knew when he raised his arms to stretch and he took a deep breath that he looked so in control that he was biding his time before he attacked for home to win his fourth gold medal.
It is hard to pick just a few favourite moments. The atmosphere on Thriller Thursday when Jonnie Peacock silenced 82,000 people by merely holding his finger to his lips amazed even the most hard bitten supporters. One commentator said he had never heard that support for anyone, not even Usain Bolt. The 100m then turned into one of the best races of the Games, not just the most hyped.
Leaving the Olympic Park every night, so many people came up and wanted to share the joy they had experienced. There were the families who said they were worried about taking their children to goalball because they feared that they couldn’t keep quiet for that long, and they voiced their surprise when they did. And there were disabled children saying they now had a real choice of people they wanted to emulate.
The overriding feeling in and around the Games was that the Paralympic movement had developed – and is continuing to develop. Sometimes the signs were quite subtle: Seb Coe talking about the Paralympics, while the Olympics were still on, for example. Being able to say the Olympic and Paralympic Games instead of having to divide them by having two Games in the same sentence was another. And then, less subtle but genuinely groundbreaking, the sight of three Paralympians making the 12-strong shortlist for the BBC Sports Personality of the Year Award.
Most dramatic of all, though, were the recent UK Sport announcements of the specific funding packages. Paralympic sport came out of the deal generally quite well with only archery and powerlifting receiving less than before. The challenge is both one of motivating talent without a home Games, and finding a place for those who have been inspired by London. The harsh world of Lottery-funded sport is about the medals table and the potential to get on it.
As a result, men’s goalball is no longer going to be funded, only the women’s game. The argument of the men having to build up a national game is valid, but there are not thousands – even hundreds – of blind men knocking on the door to get into sport. Development is neither an art nor a science – there is a lot of luck, and you need numbers participating. I have never been a fan of targeting weak medals as opposed to development, as you have so much to lose if someone with a little more talent comes along.
There was a fear for a while that, post-2012, there could have been a funding cut, but many people have worked tirelessly behind the scenes to protect it. In hindsight, no Government based on the success of this year would probably have dared to cut the funding. Post-Rio is the challenge and nobody wants Great Britain to be where Australia were at these Olympics. The real challenge is not for Britain but rather for the International Paralympic Committee. They need to build on the success of this year, crack the media in the USA, and attract more sponsors.
Paralympic sport in the UK will never be the same again: we just need to keep spreading the enlightenment.
Wednesday, December 19, 2012
In Florida, Garrett Holeve, MMA fighter with Down syndrome, on his way to changing sport
Intro to a story in the Broward Palm Beach New Times in Florida:
"I'm dangerous," 23-year-old Garrett Holeve (pictured with his father) warns as he bounces around a bedroom in his parents' suburban, single-story house, throwing punches and kicks. A pungent combination of protein-powered farts, dirty laundry, and ball sweat permeates the air.
"I'll hurt a guy real bad," Garrett brags. "I'll be covered in too much blood, and I'll keep hurting him. Kick him in the mouth so hard the mouth guard flies out."
The words don't roll off his tongue. They bunch up in his throat and pour out in a slurred manner that's difficult to understand. This is just one of the ways Garrett's Down syndrome manifests itself.
"Oh, umm," he stammers frequently when looking for an answer. "Finding a fight takes time. My friend Chris is going to get me a fight."
He carries other telltale physical characteristics of the genetic condition: small ears that look like half-hearts, almond-shaped eyes, wide hands with short fingers, and a small, round mouth. Further affecting his health is rheumatoid arthritis that afflicts his right knee.
Garrett stands five feet tall and weighs 136 pounds. But he can drop to 125 pounds in a few days to make weight for his beloved sport, mixed martial arts. His black wifebeater reveals the tattoo of a black Punisher skull engulfed in black flames near his left shoulder. His neck and arms are solid muscle, large enough to make clear that his fists could permanently alter the alignment of an opponent's nose.
Here, in a modest home in one of Cooper City's gated communities, the floor is littered with kettlebells, a curl bar, a medicine ball, dumbbells, and two towel-covered milk crates that serve as makeshift pushup stands. Framed on the wall is the white tape in which MMA megastar Tito Ortiz wrapped his wrists for a recent Las Vegas fight. There's a poster of sharks, pictures of a half-dozen other professional fighters, and some torn-out pages of a Hooter's calendar featuring bikini-clad butts.
Playing on the flat-screen TV set is a DVD of Garrett's first exhibition bout earlier this year against a guy named Antonio Martin at Seminole Immokalee Casino. The crowd roars when Garrett throws a spinning backfist, but back in his room, the young man isn't paying attention. He's kneeing an imaginary opponent in the face before dropping to his knees to pound the thin, smelly air into submission. He then lifts his shirt and flexes his abs, a solid undefined wall of muscle padded by pasty white flesh. "This is the new me," he says enthusiastically.
For someone with Down syndrome, Garrett is extremely high functioning. Still, his cognitive ability is roughly equivalent to that of a 12-year-old's. His reading and math skills are at a third-grade level. He can't tell if a cashier gives him correct change after he buys a slice of pizza, his mom says, and it's unlikely he'll be able to understand this entire article.
But Garrett has found salvation in MMA, a combative sport that John McCain dubbed "human cockfighting." Though it was once banned in a dozen states for its gruesome brutality, nowadays jujitsu black belts of the umpteenth degree battle Olympics-grade wrestlers in refereed yet still-violent face-offs. This more polished competition has been masterminded by the Ultimate Fighting Championship, or UFC, the largest and most profitable promotion company in the world.
The sport has allowed Garrett to reinvent himself — mind and body. At the gym, he's not Garrett Holeve, the guy with Down syndrome. He's G-Money, an up-and-coming fighter with big ambitions.
"I will go for a contract for the UFC, get the contract, sign it, and be on UFC," Garrett declares.
But there's a problem. Even though he has spent countless hours training at American Top Team Weston, Garrett can't find a fair fight. People who run the Special Olympics have given little indication they will ever allow the sport, and it's unclear how many parents of special-needs' people would even allow their children to pursue MMA. And though he has fought two exhibitions against abled competitors, few fighters want to be the one who knocks out a guy with Down syndrome or, worse, gets knocked out by him.
Visualizing his first professional fight, Garrett snaps his foot into the air and says, "That's the kick I do," demonstrating an impressive combination of limberness, balance, and power. "Knockout."
Tuesday, December 18, 2012
Bones tell story of compassion, caregiving of disabled people in ancient times
From The NY Times:
While it is a painful truism that brutality and violence are at least as old as humanity, so, it seems, is caring for the sick and disabled.And some archaeologists are suggesting a closer, more systematic look at how prehistoric people — who may have left only their bones — treated illness, injury and incapacitation. Call it the archaeology of health care.The case that led Lorna Tilley and Marc Oxenham of Australian National University in Canberra to this idea is that of a profoundly ill young man who lived 4,000 years ago in what is now northern Vietnam and was buried, as were others in his culture, at a site known as Man Bac.Almost all the other skeletons at the site, south of Hanoi and about 15 miles from the coast, lie straight. Burial 9, as both the remains and the once living person are known, was laid to rest curled in the fetal position.When Ms. Tilley, a graduate student in archaeology, and Dr. Oxenham, a professor, excavated and examined the skeleton in 2007 it became clear why. His fused vertebrae, weak bones and other evidence suggested that he lies in death as he did in life, bent and crippled by disease.They gathered that he became paralyzed from the waist down before adolescence, the result of a congenital disease known as Klippel-Feil syndrome. He had little, if any, use of his arms and could not have fed himself or kept himself clean. But he lived another 10 years or so.They concluded that the people around him who had no metal and lived by fishing, hunting and raising barely domesticated pigs, took the time and care to tend to his every need.“There’s an emotional experience in excavating any human being, a feeling of awe,” Ms. Tilley said, and a responsibility “to tell the story with as much accuracy and humanity as we can.”This case, and other similar, if less extreme examples of illness and disability, have prompted Ms. Tilley and Dr. Oxenham to ask what the dimensions of such a story are, what care for the sick and injured says about the culture that provided it.The archaeologists described the extent of Burial 9’s disability in a paper in Anthropological Science in 2009. Two years later, they returned to the case to address the issue of health care head on. “The provision and receipt of health care may therefore reflect some of the most fundamental aspects of a culture,” the two archaeologists wrote in The International Journal of Paleopathology.And earlier this year, in proposing what she calls a “bioarchaeology of care,” Ms. Tilley wrote that this field of study “has the potential to provide important — and possibly unique — insights into the lives of those under study.” In the case of Burial 9, she says, not only does his care indicate tolerance and cooperation in his culture, but suggests that he himself had a sense of his own worth and a strong will to live. Without that, she says, he could not have stayed alive.“I’m obviously not the first archaeologist” to notice evidence of people who needed help to survive in stone age or other early cultures, she said. Nor does her method “come out of the blue.” It is based on and extends previous work.Among archaeological finds, she said, she knows “about 30 cases in which the disease or pathology was so severe, they must have had care in order to survive.” And she said there are certainly more such cases to be described. “I am totally confident that there are almost any number of case studies where direct support or accommodation was necessary.”Such cases include at least one Neanderthal, Shanidar 1, from a site in Iraq, dating to 45,000 years ago, who died around age 50 with one arm amputated, loss of vision in one eye and other injuries. Another is Windover boy from about 7,500 years ago, found in Florida, who had a severe congenital spinal malformation known as spina bifida, and lived to around age 15. D. N. Dickel and G. H. Doran, from Florida State University wrote the original paper on the case in 1989, and they concluded that contrary to popular stereotypes of prehistoric people, “under some conditions life 7,500 years ago included an ability and willingness to help and sustain the chronically ill and handicapped.”In another well-known case, the skeleton of a teenage boy, Romito 2, found at a site in Italy in the 1980s, and dating to 10,000 years ago, showed a form of severe dwarfism that left the boy with very short arms. His people were nomadic and they lived by hunting and gathering. He didn’t need nursing care, but the group would have had to accept that he couldn’t run at the same pace or participate in hunting in the same way others did.Ms. Tilley gained her undergraduate degree in psychology in 1982 and worked in the health care industry studying treatment outcomes before coming to the study of archaeology. She said her experience influenced her interest in ancient health care.What she proposes, in papers with Dr. Oxenham and in a dissertation in progress, is a standard four-stage method for studying ancient remains of disabled or ill individuals with an eye to understanding their societies. She sets up several stages of investigation: first, establishing what was wrong with a person; second, describing the impact of the illness or disability given the way of life followed in that culture; and third, concluding what level of care would have needed.A paralyzed person, for example, would need “direct support” similar to nursing care while someone like Romito 2 would need “accommodation,” that is to say tolerance of his limitations and some assistance.
Debra L. Martin, associate professor of biological anthropology at the University of Nevada, Las Vegas, invited Ms. Tilley to write “The Bioarchaeology of Care” for a special report on new directions in bioarchaeology published this year in the Archaeological Record, the magazine of the Society for American Archaeology.She said in an e-mail that what Ms. Tilley proposes “is a very nicely integrated approach” to using all the available evidence. “Lorna’s innovative approach,” she said, “has provided a way to move from the bones of individuals to thinking about the community as a whole.”The fourth stage in the proposed method is where the gathered facts form the basis for interpretation. Extrapolating from hard evidence drawn from human remains to conclusions about how people lived is at the heart of bioarchaeology, a word coined in the 1970s by Jane E. Buikstra at Arizona State University to describe using the methods of physical anthropology, which concentrates on the bones, and those of archaeology, which concentrates on the culture and its artifacts, to try to “people the past,” as she phrases it, to put ancient people into a cultural context.Dr. Buikstra, director of the Center for Bioarchaeological Research, who currently concentrates on the co-evolution of humans and their diseases, said that “People have from time to time across the years tried to attribute caring and caring for” to ancient humans. But, she said, “getting into the minds of ancient people” is always difficult. Ms. Tilley’s methods for how and when to make that kind of leap would base such attempts on standards used today for evaluating health care needs for severely disabled people.Dr. Martin, who studies violence and illness as well, gave an example from her own work of the sort of case that can benefit from Ms. Tilley’s approach. The case is described in a coming book, “The Bioarchaeology of Individuals.” A skeleton of a young woman about 18 years old from a site on the Arabian Peninsula more than 4,000 years old indicated that the woman had a neuromuscular disease, perhaps polio.“Her condition likely made it difficult for her to walk,” Dr. Martin wrote in an e-mail. “She had exceedingly thin arm and leg bones with very little buildup of normal muscle attachments.” She probably received round-the-clock care, Dr. Martin concluded.But one problem that she had was apparently not a result of the disease. The teeth that she had were full of cavities, and she was “missing teeth from abscesses and periodontal disease.”Those who cared for the young woman may have been too kind, Dr. Martin said. Her people grew dates, and, “Perhaps to make her happy, they fed her a lot of sticky, gummy dates, which eventually just rotted her teeth out, unusual for someone so young.”
iPads, Bob Marley's 'One Love' help autistic high schoolers in NY make sweet music
From Fast Company:
On one recent day at PS 177 in Queens, NY, a scene that’s typical this time of year unfolds: the school band plays some holiday tunes in the hallway. But there’s something different about this band: all six students have severe learning disabilities--most are autistic to some degree--and their instrument of choice isn’t a horn or woodwind, but a tablet computer.
Their teacher, Adam Goldberg, has mounted eight iPads on stands and arranged them in a horseshoe pattern. Members of the PS 177 Technology Band, as they’ve dubbed themselves, assume their places and play an elegant, faithful rendering of “Dance of the Sugar Plum Fairy,” from “The Nutcracker.” “Carol of the Bells” and an original tune, “4-2-4 Jam,” soon follow. Festively garbed teachers and students pass and applaud between numbers.
In some cases these are kids that were nonverbal. They really adapted and changed tremendously.”
“We perform, they love it, they clap. It’s my favorite thing to do,” one of the band members, Jaquan Bostick, 16, tells me later.
To hear Goldberg and the New York Department of Education’s Leslie Schecht tell it, the iPad orchestra before me is a symbol of the transformative power of Apple devices in special education. “In some cases, these are kids that were nonverbal,” says Schecht. “They really adapted and changed tremendously.”
Neither Schecht nor Goldberg have any financial relationship with Apple (“I wish,” says Schecht, when I ask if the DOE gets any iPad handouts), but they’ve invited me to PS 177 solely to spread the gospel about what they think could be a transformative technology for students with autism or other learning disabilities.
Goldberg tells the story of one student, James, who would only repeat the word “batwooie”--bathroom--on loop, largely to escape social situations. Over time, Goldberg got James to try music applications on the iPad. One day in class, Goldberg saw that James appeared in a more outgoing mood. Goldberg invited James to the front of the class to sing Bob Marley’s “One Love,” which the other students had been singing--and he “sang every word,” recalls Goldberg. Then James turned to his teacher and said, “iPad please.”
Another student, Omari, had behavioral problems that sometimes compelled teachers to physically remove him from the room. One day, when Omari seemed to be nearing a tantrum, Goldberg managed to calm the student with the mellowing Brian Eno-made music app, Bloom.
“When I saw the effect these had on the kids,” says Kathy Posa, the school’s principal, “I pulled together as much budget as I could and ordered 90.” Schecht estimates that about 5,000 iPads are currently in use throughout the 56 schools in District 75, New York’s citywide special education district. They’re not sure just what it is about iPads that special ed students, and particularly autistic students, respond to--some combination of the visual and tactile, and the way the device instantly reacts to inputs.
It was like getting his ear to conduct his hand, out of that tactile sensitivity. Because he does have a fantastic ear.”
No one is probably more delighted to discover the iPad’s usefulness to special needs students than Apple itself, suggests Schecht. Apple set out, after all, simply to make a device to capture a broad consumer computing market. “I don’t think Apple had any idea they would have an impact on education” with the iPad, says Schecht, “and special education is just the gravy. They had no idea it was going to work so well with students with special needs.”
It's something Apple is playing close attention to now, though. "We're seeing uses out there that are just heartwarming," Phil Schiller, SVP of worldwide marketing, says a little before the 13:00 mark of this Apple-produced video, which shows various cases of autistic youth engaging with the iPad.
“It’s not a magic bullet,” concedes Schecht. “But in some cases, it really is.”
Sunday, December 16, 2012
Associated Press: No link between Asperger's, violence, experts report
From The AP:
A law enforcement official, speaking on condition of anonymity because the person was not authorized to discuss the unfolding investigation, said Lanza had been diagnosed with Asperger's.
High school classmates and others have described him as bright but painfully shy, anxious and a loner. Those kinds of symptoms are consistent with Asperger's, said psychologist Eric Butter of Nationwide Children's Hospital in Columbus, Ohio, who treats autism, including Asperger's, but has no knowledge of Lanza's case.
Research suggests people with autism do have a higher rate of aggressive behavior — outbursts, shoving or pushing or angry shouting — than the general population, he said.
"But we are not talking about the kind of planned and intentional type of violence we have seen at Newtown," he said in an email.
"These types of tragedies have occurred at the hands of individuals with many different types of personalities and psychological profiles," he added.
Autism is a developmental disorder that can range from mild to severe. Asperger's generally is thought of as a mild form. Both autism and Asperger's can be characterized by poor social skills, repetitive behavior or interests and problems communicating. Unlike classic autism, Asperger's does not typically involve delays in mental development or speech.
Experts say those with autism and related disorders are sometimes diagnosed with other mental health problems, such as depression, anxiety, bipolar disorder or obsessive-compulsive disorder.
"I think it's far more likely that what happened may have more to do with some other kind of mental health condition like depression or anxiety rather than Asperger's," Laugeson said.
She said those with Asperger's tend to focus on rules and be very law-abiding.
"There's something more to this," she said. "We just don't know what that is yet."
After much debate, the term Asperger's is being dropped from the diagnostic manual used by the nation's psychiatrists. In changes approved earlier this month, Asperger's will be incorporated under the umbrella term "autism spectrum disorder" for all the ranges of autism.
Croatia lifts voting prohibition for people with disabilities
From Mental Disability Advocacy Center:
Dec. 14 the Croatian parliament added 16,355 adults to the electoral register. These people are all under guardianship, a legal regime which, until today, had excluded them from their right to political participation. MDAC and the Croatian NGO Shine had highlighted this anomaly in their 2011 report, “Out of Sight: Human Rights in Psychiatric Hospitals and Social Care Institutions in Croatia”.
“MDAC congratulates Croatia for being the first European country to amend its election law in recent times to allow people with disabilities to vote,” said Oliver Lewis, MDAC Executive Director. “We call upon the government to continue this good work by ensuring that these new voters are enabled to exercise their autonomy in all areas of their life, not just in the ballot box.”
The Croatian government had previously recommended that judges in individual hearings be given the authority to remove someone’s right to vote on the basis of their disability. This proposal flagrantly breaches the UN Convention on the Rights of Persons with Disabilities, a fact which was pointed out very firmly by civil society organisations including the Association for Social Affirmation of People with Mental Disabilities (SHINE), GONG and the Association for Self-Advocacy. The office of the Disability Ombudsperson also voiced its displeasure with the original proposals, relying on recommendations by the UN Committee on the Rights of Persons with Disabilities which insists on disability being no barrier to full and equal political participation.
The new legal provisions are contained in the Register of Voters Act, which enters into force eight days after being published in the Official Gazette, i.e. in approximately two weeks’ time.
Saturday, December 15, 2012
Access4Kids device brings tablets in reach of disabled kids with fine motor impairments
From Georgia Tech. Ayanna Howard (right) and Hae Won Park (left) model the Access4Kids device that allows kids with fine motor impairments to control a tablet.
Even those who consider themselves particularly coordinated will no doubt have been guilty of a misplaced tap here or a badly timed swipe there when using touchscreen devices. But spare a thought for children with fine motor impairments who are essentially excluded from the touchscreen device world and all its educational, entertainment and social benefits. A new device called Access4Kids aims to bring this world within reach of such users.
While there are various technologies available that bring control of traditional computer platforms to those with motor impairments, the explosion in the use of touchscreen devices has caught many by surprise and left children with fine motor impairments on the sidelines.
Developed by Ayanna Howard, professor of electrical and computer engineering, and graduate student Hae Won Park at Georgia Tech, Access4Kids is a wireless input device that uses force-sensitive resistors to measure pressure from physical movements and converts them into fine-motor gestures to control a tablet.
Aimed at children lacking the ability to touch a specific small region of a touchscreen with the appropriate amount of force and timing required for press and swipe gestures, the current prototype device includes three force-sensitive resistors, which the child hits or swipes with their fist. Various combinations of hits or swipes are translated into different “touch-based” commands that are relayed to the tablet.
Supporting open-source apps and software also developed at Georgia Tech gives users access to off-the-shelf apps, such as Facebook and YouTube, as well as custom-made therapy and education apps.
In its current form, the device can be worn around the forearm or placed on the arm of a wheelchair, but Howard is working on a second prototype that includes wireless sensors that can be placed anywhere a child is able to hit them, such as with a foot or the side of the head.
The first prototype has already received positive feedback from typically developing children and children with disabilities alike, as well as caregivers. User trials for the second prototype are set to begin soon with Howard hoping to start clinical trials early in 2013.
“We can’t keep it in the lab,” Howard said. “It doesn’t make sense for me to have one child, one at a time look at it and say ‘Hey that’s really cool’ and not have it out there in the world. The real goal is to make it safe and efficient so someone can make it into a commercial product.”
UK 'more positive about disability' following Paralympics
From BBC News:
Three-quarters of Britons feel more positive about the role of people with disabilities in the UK following the Paralympics, a BBC survey three months on from the Games suggests.Some 79% of 2,400 non-disabled people questioned by ComRes for the BBC also said they thought wider perceptions of disability had improved.
But the figure fell to 65% among the 600 people with disabilities surveyed.
A leading charity has welcomed the news but says there is "some way to go".
ComRes polled more than 3,013 UK adults over three weekends in late November and December, including 600 people with a "long-standing mental or physical disability or condition".According to the research, 75% said they felt more positive about the role of people with disabilities.
Among women, 78% said they felt more positive now compared to 72% of men.
In a poll for the Charities Aid Foundation in September 2012 - during the Paralympics - ComRes found 76% of all respondents felt the games had made them feel more positive about the role of people with disabilities in the UK.
Meanwhile, more than three-quarters (76%) of all respondents - including those with a disability - say they think people's attitudes towards those with disabilities have improved since the games, while just 1% believe perceptions have worsened and 17% feel there has been no change.
However, the research suggests a divergence of views between those with a disability and those without one.
Respondents who have a longstanding mental or physical disability or condition are less likely than those who have not to say people's perceptions have improved - 65% compared to 79% of those without a disability.
Those with a disability are also "more likely to say they think there has been no change in perceptions, or to say they think people's perceptions continue to be negative," the survey reports.
Richard Hawkes, chief executive of the disability charity Scope, told the BBC: "It's a tough time to be disabled. It's a battle to get the right support. You're more likely to be out of work. It can be a struggle to get out and about in the community.
"Attitudes underpin everything. Access, for instance, is as much about thinking differently as it is spending money."
Mr Hawkes added: "We clearly still have some way to go, but we shouldn't write off the Paralympics effect.
"We need to build on the momentum. It's about visibility and greater discussion. Let's ask what else we can do to increase disabled people's visibility in the media, in politics, in the arts and above all in everyday life?"
Tuesday, December 11, 2012
In planned film, "Love Land," young woman with intellectual disability fights the label that keeps her from her community
From the "Love Land" production team. You can find the film on Facebook here.
Love Land is a narrative dramatic feature film that follows Ivy, a young woman with a severe traumatic brain injury that affects her motor and cognitive skills, as she faces her refusal to be identified as a person with an intellectual disability. When she is placed in an institution for being a danger to herself and others, Ivy will stop at nothing to prove to the world, and to herself, that she... is “normal” enough to transcend the label of “Special.”
The film is a tragedy, documenting one community’s failure to transcend an age-old system of “segregating the Special.” Despite its ambivalent outcome, the tragedy of Love Land is offset by the hope of a better future marked by interdependence and self-determination for all.
Love Land is about the importance of diverse (and often risky) experiences to the fulfillment of the human condition. It's about refusing to accept the segregation of the world's largest minority, and about jump-starting a cultural discourse in America to help change perceptions of “pity and fear” to those of “equal citizenship” .
Love Land is a movie with nuanced, layered characters that reach beyond stereotypes, presenting characters with intellectual disabilities as complete and conflicted human beings—capable of good, evil, and grey—with far-reaching desires and vibrant, profound sexual identities; it is a movie that dares to say that social views – not individual bodies – are the real barriers for people with disabilities ; it says that “charitable interaction” is unacceptable, proclaiming full community inclusion as a civil right; and it puts its money where its mouth is by only casting professional actors with the actual disability labels portrayed by the characters in the film. Love Land further gains a great deal of creative integrity from its ties with the constituents of activist organizations and disability scholarship programs.
Hashtag #Paralympics most trending UK sports event of 2012, Twitter reports
From Orange News in the UK:
The hashtag #Paralympics has topped the table for the most trending UK sport event of 2012, beating off stiff competition from the Olympics and many leading football clubs, according to Twitter.In a football-dominated top 10 list, the Olympics came in at number four, according to the 2012 trends study by the social media network.
The International Paralympic Committee (IPC), which was in charge of the Games, is particularly pleased at topping the trending list which shows spikes in Twitter conversations. The 2012 trends reveal what captured the public's attention, rather than what terms were consistently popular.
Craig Spence, the IPC's communications director, said: "Our aim was to make the London 2012 Paralympics a truly digital Games and I think this is reflected with #Paralympics topping the most trending UK sport event table.
"From the word go our athletes were encouraged to embrace social media throughout the Games, tweeting and Samsung video blogging from behind the scenes. We provided more behind-the-scenes access during London 2012 than any other global sporting event previously.
"This success is a real team effort with the IPC, Locog (the London 2012 organisers), BPA (British Paralympic Association), Channel 4, BBC Radio 5 Live, media, athletes and most importantly British tweeters all playing a significant part."
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