Thursday, September 30, 2010

With lack of some services in Nevada, young people with disabilities must seek treatment out of state

From the Las Vega Review-Journal:

LAS VEGAS -- Sandy Waide's grandson was having a difficult time in preschool. He ignored his teacher's instructions and refused to sit still. One morning he took a fish out of the classroom aquarium. That ended up being his last day there.

The school told Waide her grandson had a real behavior problem. But she suspected it was more than just that.

She took "Nicholas," whose name has been changed in this story to protect his identity, to doctors who explained that his outbursts and impulsive behavior were attributable to autistic spectrum disorder, Asperger's syndrome, and fetal alcohol and drug exposure.

Getting the diagnoses was the easy part.

The greater long-term challenge became locating effective treatment and schools equipped to help Nicholas develop. Nicholas ultimately ran out of options in Southern Nevada.

Earlier this summer, after a conviction in juvenile court for lewd behavior, the 16-year-old boarded a plane for Texas. He will spend the next year at the San Marcos Treatment Center, which treats children with multiple psychological disorders.

A few days after Nicholas left Las Vegas, Waide's voice quivered as she talked about her grandson, whom she has raised since birth: "He's 1,300 miles from me. That's hard, really hard. He should have been able to stay here where he grew up."

But Nicholas is just one of many children currently in other states because Nevada lacks the mental health resources to treat them within the state.

As of July, more than 100 children with mental health and cognitive disorders were in out-of-state treatment centers. It costs about $75,000 a year, on average, to house Medicaid-eligible children in out-of-state facilities.

The number of Southern Nevada youths placed out of state has more than doubled in the past two years, according to the Clark County Children's Mental Health Consortium, a group of advocates, government officials, and mental health professionals that earlier this year released a report about the lack of mental health resources in Southern Nevada.

Mental health officials agree that out-of-state placements, while often necessary in the absence of adequate in-state resources, are undesirable because they limit contact between children and their families.

"Families need to be involved in the treatment aspect of kids," said Diane Comeaux, administrator of the state Division of Child and Family Services.
If a child is out of state, and away from a support network, Comeaux said, it creates a challenging situation once the child returns home. Her agency is currently trying to reduce the number of youths sent out of state by patching together services in the community.

Out-of-state placements are symptomatic of a larger problem, said Fritz Reese, director of Clark County's Juvenile Justice Services.

"We've never been able to develop an infrastructure that would allow us to keep our kids in state," Reese said. "Let's face it, Las Vegas is not a traditional community where you've had resources in place for decades and things have gotten better and more polished over time."

Recent studies have shown that Nevada, which spends about $125 million annually on children's mental health services, has fewer public psychiatric beds per capita than nearly all other states. Partly as a result, the percentage of Nevada children diagnosed with mental health conditions who are actually getting treatment for those conditions (53 percent) is among the lowest in the country, according to, a website run by the Henry J. Kaiser Family Foundation. Only six states have a lower percentage.

In the absence of public mental health resources, the state has relied heavily on the private sector to fill the void.

The Nevada Commission on Mental Health & Developmental Services recently released a long-term proposal to reform the state's current system for delivering mental health services. It includes putting a greater emphasis on front-end services that treat children's problems early in life.
Existing funds could be used more effectively, the report said.

Nicholas' time in school and with county social workers was bookended by visits to Desert Willow and Montevista, local psychiatric hospitals that handle emergency cases.

His impulsive behavior, which included overturning desks and disrobing on the school bus, led to the same question by exasperated teachers: Is he doing these things because he wants to or because there is a problem?
Waide knew the answer. And the problem was getting worse.

By high school, Nicholas was reading at a college level, yet doing math at a second-grade level. He had also developed an addiction to pornography.
"As you go through puberty, other parts of your brain light up," said Waide, who also raised Nicholas' older brother. "Because he did not have his needs addressed earlier, he started adding new layers on top of what he already had."

Nicholas was staying in a local group home earlier this year when he committed a sexual offense that led to four months in juvenile detention and to a court order sending him to the residential treatment facility in San Marcos, Texas.

Family Court Judge William Voy, who presides over juvenile delinquency cases in Clark County, said he has few options in such cases given the state's shortage of adolescent psychiatric programs.

"I don't want to send kids out of state, but sometimes I have no choice," said Voy, who was not the judge in Nicholas's case. "We've not made any progress whatsoever in providing residential treatment for kids in Nevada."
As it stands, state agencies are required to do annual site visits at out-of-state treatment centers.

Many families seeking children's mental health services wind up in local emergency rooms, which have become the gateway for crisis intervention. The county mental health consortium found the number of youths entering emergency rooms for behavioral health problems has nearly doubled in the last four years from about 700 to about 1,400.

In 2007, the Nevada Legislature approved a plan to fund a mobile crisis intervention program, with the goal of reducing the number of emergency room admissions and creating an enhanced system for families to get long-term help once a crisis situation is over. But because of state budget cuts, the program was never launched.

Waide hopes her grandson's time in Texas will help him develop into a successful and productive adult.

"I know in my heart he's a good boy," Waide said. "I'm not saying that because I'm a parent. I'm saying that because people who meet him see that he wants to please. But when you don't have the resources in place to steer that and develop that from a very early age, then it will impact kids for the rest of their lives."