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YANGON, Myanmar -- More than five months after Cyclone Nargis struck southern Myanmar, people with physical disabilities (PwDs) continue to await assistance.
Little of the international relief targeting the 2.4 million people affected has filtered down to them. Scores lost their homes, property and livelihoods to the storm, which left nearly 140,000 dead or missing. Others lost their mobility devices – including, crutches, wheelchairs and prosthetic limbs – to flood waters.
Many were also badly traumatised and have yet to receive the psychosocial support they need.
“Many people were affected by the cyclone and are now receiving assistance. Unfortunately very little has come to us,” said Nay Lin Soe, who was stricken with polio as a youngster and can only walk with the aid of crutches.
Today he is one of 125 disabled people working together to help other PwDs in his community rebuild their lives and homes. They have a simple office within the Eden Centre for Disabled Children in Yangon, the former Burmese capital.
Prior to Nargis, there were an estimated 30,000 PwDs living in Myanmar’s badly affected Ayeyarwady Delta, including 5,000 children. In the wake of the disaster, health experts speculate that another 3,000-5,000 PwDs may have been added to their ranks.
The Post Nargis Joint Assessment (PONJA), considered by many as the blueprint for the humanitarian response to the area, makes only brief mention of PwDs, saying they should be included. An assessment of the number of PwDs and the challenges ahead in terms of helping them has yet to be carried out.
The cyclone-affected area was inaccessible at the best of times, with no concrete paths, houses built on stilts and areas largely surrounded by water. For PwDs things are obviously more difficult.
The psychosocial impact of the cyclone on PwDs, documented in the PONJA, is also significant, with some left apart or behind when their families or caretakers fled the storm. Some are experiencing difficulties recovering a sense of inclusion in their communities. Others suffer from sensorial or mental impairments and are often not properly informed about what is happening around them.
Beth Haller, Ph.D., is Co-Director of the Global Alliance for Disability in Media and Entertainment (www.gadim.org). A former print journalist, she is a member of the Advisory Board for the National Center on Disability and Journalism (https://ncdj.org/). Haller is Professor Emerita in the Department of Mass Communication at Towson University in Maryland, USA. Haller is co-editor of the 2020 "Routledge Companion to Disability and Media" (with Gerard Goggin of University of Sydney & Katie Ellis of Curtin University, Australia). She is author of "Representing Disability in an Ableist World: Essays on Mass Media" (Advocado Press, 2010) and the author/editor of Byline of Hope: Collected Newspaper and Magazine Writing of Helen Keller (Advocado Press, 2015). She has been researching disability representation in mass media for 30+ years. She is adjunct faculty in the Disability Studies programs at the City University of New York (CUNY) and the University of Texas-Arlington.